Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities.
Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities.
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DOI：
10.1186/1472-6963-12-431
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发表时间：
2012-11-26
影响因子：
2.8
通讯作者：
Wyke S
中科院分区：
文献类型：
--
作者：
Jahagirdar D;Kroll T;Ritchie K;Wyke S
患者报告结果测量（PROM）是健康状况的自我报告测量，越来越多地被推广用于医疗质量的改善。然而，识字能力低或有学习障碍的人可能会发现PROM很难完成。我们的研究调查了利益相关者对PROM的可访问性和使用的意见，以制定更具包容性的做法的建议。以推荐用于慢性阻塞性肺疾病（COPD）的PROM为例，我们对识字能力低和/或学习障碍的人进行了8次访谈，并对20名卫生专业人员和COPD患者进行了4次焦点小组访谈。讨论内容包括使用EQ-5D和St乔治呼吸问卷作为提示的PROM的格式和交付。主题框架分析侧重于三个主要主题：可访问性、易用性和上下文因素。无障碍性包括与调查表格式有关的问题，改进建议包括加大字体和增加白色空间。易用性包括关于PROM管理的讨论。虽然卫生专业人员建议PROM可以在候诊室完成，但患者更喜欢更隐私的环境，并且可以从他们认识的人那里获得帮助。背景因素包括与完成PROM相关的其他挑战和更广泛的问题。虽然卫生专业人员强调了该系统在管理识字率低/学习障碍患者方面造成的困难，但患者参与者强调，了解PROMs的目的对于减少恐吓非常重要。调整PROMs的格式，让病人明确选择在哪里可以完成它们，并明确传达PROMs的目的和对病人的好处，可能有助于防止在卫生服务中使用PROMs时的不平等。
Patient reported outcome measures (PROMs) are self-report measures of health status increasingly promoted for use in healthcare quality improvement. However people with low literacy skills or learning disabilities may find PROMs hard to complete. Our study investigated stakeholder views on the accessibility and use of PROMs to develop suggestions for more inclusive practice. Taking PROMs recommended for chronic obstructive pulmonary disease (COPD) as an example, we conducted 8 interviews with people with low literacy skills and/or learning disabilities, and 4 focus groups with 20 health professionals and people with COPD. Discussions covered the format and delivery of PROMs using the EQ-5D and St George Respiratory Questionnaire as prompts. Thematic framework analysis focused on three main themes: Accessibility, Ease of Use, and Contextual factors. Accessibility included issues concerning the questionnaire format, and suggestions for improvement included larger font sizes and more white space. Ease of Use included discussion about PROMs’ administration. While health professionals suggested PROMs could be completed in waiting rooms, patients preferred settings with more privacy and where they could access help from people they know. Contextual Factors included other challenges and wider issues associated with completing PROMs. While health professionals highlighted difficulties created by the system in managing patients with low literacy/learning disabilities, patient participants stressed that understanding the purpose of PROMs was important to reduce intimidation. Adjusting PROMs’ format, giving an explicit choice of where patients can complete them, and clearly conveying PROMs’ purpose and benefit to patients may help to prevent inequality when using PROMs in health services.
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影响因子：
4.5
作者：
Thumboo, Julian;wee, H-Lin Wee;Fong, Kok-Yong
通讯作者：
Fong, Kok-Yong
影响因子：
3.6
作者：
Hahn, EA;Cella, D;Webster, K
通讯作者：
Webster, K
影响因子：
3.4
作者：
Groves, RM;Singer, E;Corning, A
通讯作者：
Corning, A
影响因子：
3
作者：
Harniss, Mark;Amtmann, Dagmar;Johnson, Kurt
通讯作者：
Johnson, Kurt
DOI：
10.1186/1748-5908-7-42
发表时间：
2012-05-11
期刊：
Implementation science : IS
影响因子：
--
作者：
Mizen LA;Macfie ML;Findlay L;Cooper SA;Melville CA
通讯作者：
Melville CA