Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review.
Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review.
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DOI：
10.1186/s12913-022-07617-y
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发表时间：
2022-02-17
影响因子：
2.8
通讯作者：
Miller AR
中科院分区：
文献类型：
--
作者：
Gardiner E;Wong V;Lin G;Miller AR
神经残疾儿童（ND）代表了一个重要的群体，需要协调支持。患者导航的主要重点是：促进对分散系统的访问和连接；以及提供教育和情感支持。鉴于自闭症儿童及其家庭的独特需求，以这些核心概念为基础的项目可能会大有裨益。然而，包含导航相关概念和活动（例如，护理协调、病例管理、家庭支持）的术语的多样性给实践和研究都带来了挑战。这项范围审查审查了已发表的关于ND儿童及其家庭导航型模型的文章中提供的术语和描述。范围审查是根据乔安娜布里格斯研究所的方法进行的。在PubMed （NCBI）、MEDLINE （Ovid）和CINAHL （EBSCO）上完成了初步搜索，确定了初始搜索词，并在MEDLINE （Ovid）和CINAHL （EBSCO）上制定了完整的搜索策略。根据我们的纳入和排除标准筛选记录后，使用研究人员开发的工具对相关文章进行全文综述并提取数据。在研究小组的密切监督下，研究选择主要由一位作者完成。在确定的2597篇论文中，有33篇被纳入最终评审。从纳入的论文中，共提取了49个术语，其中20个是独特的。在观察到的各种术语中，文章提供了以四个中心领域为特征的详细和丰富的描述，即：(i)与导航相关的资源、支持和服务旨在促进和（ii）提供什么；（iii）对其预期结果的描述；以及（四）指导原则。这一范围审查解决了我们在患者导航规范和相关支持方面的知识空白，适用于ND患儿及其家庭的具体情况。考虑到这一人群的特殊需求，我们提出了一个基于经验的综合模型，该模型综合了这一范围审查的结果。我们建议，在未来的研究和实践中，这个框架可以作为一个指南，用来仔细描述旨在将儿童和家庭与所需服务联系起来的支持是如何命名和描述的。在线版本包含补充材料，可在10.1186/s12913-022-07617-y获得。
Children with neurodisability (ND) represent a significant population with a demonstrated need for coordinated support. Patient navigation has a primary focus on: facilitating access to and connection amongst fragmented systems; as well as the provision of educational and emotional support. Given the distinct needs of children with ND and their families, programs built upon such core concepts could be of great benefit. The diversity of terminology encompassing navigation-related concepts and activities (e.g., care coordination, case management, family support), however, presents challenges to both practice and research. This scoping review examined the terminology and descriptions provided within published articles on navigation-type models for children with ND and their families. The scoping review was conducted according to the Joanna Briggs Institute methodology. A preliminary search was completed on PubMed (NCBI), MEDLINE (Ovid) and CINAHL (EBSCO) to identify initial search terms, upon which a full search strategy was developed and executed in MEDLINE (Ovid) and CINAHL (EBSCO). After screening records according to our inclusion and exclusion criteria, a full-text review of relevant articles was conducted and data extracted using a researcher-developed tool. Under close supervision by the research team, study selection was primarily performed by one author. Of the 2597 papers identified, 33 were included in the final review. From the included papers, a total of 49 terms were extracted, 20 of which were unique. Across the diversity of terminology observed, articles provided detailed and rich descriptions characterized by four central domains, namely: (i) what navigation-related resources, supports and services aim to facilitate and (ii) provide; (iii) descriptions of their intended outcomes; as well as (iv) guiding principles. This scoping review addresses a gap in our knowledge related to the specification of patient navigation and related supports as applied to the specific context of children with ND and their families. Given the particular needs of this population, we propose an empirically-informed integrative model that synthesizes the findings from this scoping review. We suggest that this framework can be used as a guide to the mindful characterization of how supports aiming to connect children and families to needed service are termed and described within future research and in practice. The online version contains supplementary material available at 10.1186/s12913-022-07617-y.
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影响因子：
6.9
作者：
Bearss K;Burrell TL;Stewart L;Scahill L
通讯作者：
Scahill L
DOI：
10.1136/bmj.b2535
发表时间：
2009-07-21
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Moher D;Liberati A;Tetzlaff J;Altman DG;PRISMA Group
通讯作者：
PRISMA Group
影响因子：
1.9
作者：
Beecham, J.;Sloper, P.;Webb, R.
通讯作者：
Webb, R.
影响因子：
1.3
作者：
Guevara, James P.;Rothman, Brooke;Yun, Katherine
通讯作者：
Yun, Katherine
影响因子：
3.8
作者：
Feinberg, Emily;Abufhele, Marcela;Silverstein, Michael
通讯作者：
Silverstein, Michael