Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis.

Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis.
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DOI:
10.2196/22005
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发表时间:
2020-10-08
影响因子:
7.4
通讯作者:
Claus EB
Claus EB
中科院分区:
医学2区
文献类型:
--
作者:
Feliciano JT;Salmi L;Blotner C;Hayden A;Nduom EK;Kwan BM;Katz MS;Claus EB

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脑肿瘤社交媒体(#BTSM)Twitter标签成立于2012年2月,作为脑肿瘤患者的疾病特定标签。为了理解#BTSM作为患者支持系统的作用,我们描述了用户描述符,增长,交互和内容共享。我们使用Symplur Signals平台分析了2012年至2018年包含#BTSM的所有推文,以获取数据并描述Symplur定义的用户类别,推文内容以及随时间推移的使用趋势。我们创建了一个网络图,其中包含2018年所有涉及#BTSM的公开转发,以可视化关键利益相关者及其与其他用户的联系。从2012年到2018年,59,764名独立用户参与了#BTSM,积累了298,904条推文。#BTSM推文的年发送量从2012年的16,394条增加到2018年的43,373条,增长了264.57%,#BTSM一直在疾病标签的前15名以及推文聊天的前15名中。患者倡导者生成的#BTSM推文最多(33.13%),而倡导团体,护理人员,医生和研究人员分别生成7.01%,4.63%,3.86%和3.37%。医生使用,虽然仍然很低,但随着时间的推移而增加。包括#BTSM在内的2018年转推网络图确定了来自患者倡导者,患者组织和医学研究人员领域的一些关键利益相关者,并揭示了他们对其他用户的影响范围。从2012年开始,#BTSM随着时间的推移呈指数级增长。我们相信它的增长表明它有潜力成为Twitter上的全球脑肿瘤信息来源,为患者,倡导者,患者组织以及医疗保健专业人员和研究人员提供信息。
The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for patients with brain tumor. To understand #BTSM’s role as a patient support system, we describe user descriptors, growth, interaction, and content sharing. We analyzed all tweets containing #BTSM from 2012 to 2018 using the Symplur Signals platform to obtain data and to describe Symplur-defined user categories, tweet content, and trends in use over time. We created a network plot with all publicly available retweets involving #BTSM in 2018 to visualize key stakeholders and their connections to other users. From 2012 to 2018, 59,764 unique users participated in #BTSM, amassing 298,904 tweets. The yearly volume of #BTSM tweets increased by 264.57% from 16,394 in 2012 to 43,373 in 2018 with #BTSM constantly trending in the top 15 list of disease hashtags, as well the top 15 list of tweet chats. Patient advocates generated the most #BTSM tweets (33.13%), while advocacy groups, caregivers, doctors, and researchers generated 7.01%, 4.63%, 3.86%, and 3.37%, respectively. Physician use, although still low, has increased over time. The 2018 network plot of retweets including #BTSM identifies a number of key stakeholders from the patient advocate, patient organization, and medical researcher domains and reveals the extent of their reach to other users. From its start in 2012, #BTSM has grown exponentially over time. We believe its growth suggests its potential as a global source of brain tumor information on Twitter for patients, advocates, patient organizations as well as health care professionals and researchers.
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