Living positively with dementia: a systematic review and synthesis of the qualitative literature
Living positively with dementia: a systematic review and synthesis of the qualitative literature
复制标题
与痴呆症一起积极生活：定性文献的系统回顾和综合
作者：
E. Wolverson;Chris Clarke;E. Moniz
目的：人们对痴呆症患者如何以及在多大程度上积极地生活在他们的病情中知之甚少。本研究的目的是审查和进行定性研究的综合，其中痴呆症患者的主观经验的帐户包含积极的状态，经验或属性的证据。研究方法：进行了一项综合综合研究，以综合和解释痴呆症患者获得积极体验的能力。进行了方法质量评估，以最大限度地提高这一综合的可靠性和有效性，并将调查结果与方法上的限制和认识论概念联系起来。结果：共纳入27篇论文。确定了与积极经验和属性有关的三个高级主题，每个主题都有不同和互补的分主题。第一个高级主题与参与老龄化生活的经历有关，而不是明确地与痴呆症生活有关。第二个主题与痴呆症本身有关，包括人们可以利用的力量来面对和对抗这种疾病。第三个主题是痴呆症患者如何超越病情，寻求保持身份甚至实现个人成长的方法。结论：这项审查提供了第一步，了解什么概念域可能是重要的，在定义积极的成果，为人们谁生活与痴呆症。强调人们尽管患有痴呆症，甚至因为患有痴呆症而拥有积极经验的潜力，对消除痴呆症的耻辱感具有重要意义，并将加强以人为本的护理方法。
Objective: Little is known about how and to what extent people with dementia live positively with their condition. This study aimed to review and carry out a synthesis of qualitative studies where accounts of the subjective experiences of people with dementia contained evidence of positive states, experiences or attributes. Methods: A meta-synthesis was undertaken to generate an integrated and interpretive account of the ability of people with dementia to have positive experiences. A methodological quality assessment was undertaken to maximize the reliability and validity of this synthesis and to contextualize the findings with regard to methodological constraints and epistemological concepts. Findings: Twenty-seven papers were included. Three super-ordinate themes relating to positive experiences and attributes were identified, each with varying and complementing sub-themes. The first super-ordinate theme related to the experience of engaging with life in ageing rather than explicitly to living with dementia. The second theme related to engaging with dementia itself and comprised the strengths that people can utilize in facing and fighting the condition. The third theme captured how people with dementia might transcend the condition and seek ways to maintain identity and even achieve personal growth. Conclusions: This review provides a first step towards understanding what conceptual domains might be important in defining positive outcomes for people who live with dementia. Highlighting the potential for people to have positive experiences in spite of or even because of their dementia has important implications for de-stigmatizing dementia and will enhance person-centred approaches to care.
DOI：
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发表时间：
1987-08
期刊：
The Journal of clinical psychiatry
影响因子：
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作者：
E. Teng;H. Chui
通讯作者：
E. Teng;H. Chui