"I thought I was going to die": Experiences of COVID-19 patients managed at home in Uganda.

"I thought I was going to die": Experiences of COVID-19 patients managed at home in Uganda.
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DOI:
10.1371/journal.pone.0295113
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发表时间:
2023
期刊:
影响因子:
3.7
通讯作者:
--
中科院分区:
综合性期刊3区
文献类型:
--
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截至2023年1月,乌干达报告了约17万例COVID-19确诊病例和3630例死亡。在第二波COVID-19开始时,乌干达卫生系统因需要护理的COVID-19患者数量突然增加而不堪重负,卫生部采取了以家庭为基础的隔离和对轻中度疾病患者的护理。在推出COVID-19家庭护理战略之前,乌干达既没有进行试点,也没有进行测试。探讨乌干达COVID-19患者居家管理经验。这是一项质性研究,旨在探讨在家治疗COVID-19患者的生活经历。这项研究是在乌干达指定治疗COVID-19患者的三家医院的患者中进行的。对在这些医院确诊并在家管理的COVID-19患者进行随访和联系,并进行深度电话访谈。利用NVIVO 12.0.0 (QRS International, Cambridge, MA)软件对数据进行主题内容分析。参与者经历了恐惧和焦虑的感觉:对死亡的恐惧,对失去工作的恐惧,对感染亲人的恐惧,以及对性欲丧失等不良事件的恐惧。参与者还报告说,除了身体虚弱、有时甚至恶化的症状外,他们还感到孤独、绝望和抑郁。除了常规药物外,参与者还服用了各种家庭疗法和草药混合物来缓解症状。此外,COVID-19护理导致了很高的经济负担,这种负担在COVID-19疾病后持续存在。污名化是参与者报告的一个主要主题。与会者建议,COVID-19护理应包括检测前、患病期间和患病后的咨询,以消除与诊断相关的恐惧和耻辱感。另一项建议是,卫生工作者应对接受家庭护理的患者进行家访,COVID-19治疗应免费。COVID-19家庭护理与恐惧、焦虑、孤独、抑郁、经济损失和耻辱有关。政策制定者应考虑各种以家庭为基础的随访策略,并在护理的各个阶段加强对COVID-19患者的咨询。
In Uganda, approximately 170,000 confirmed COVID-19 cases and 3,630 deaths have been reported as of January 2023. At the start of the second COVID-19 wave, the Ugandan health system was overwhelmed with a sudden increase in the number of COVID-19 patients who needed care, and the Ministry of Health resorted to home-based isolation and care for patients with mild to moderate disease. Before its rollout, the COVID-19 home-based care strategy had neither been piloted nor tested in Uganda. To explore the experiences of COVID-19 patients managed at home in Uganda. This was a qualitative study that was conducted to explore the lived experiences of COVID-19 patients managed at home. The study was carried out among patients who presented to three hospitals that were designated for treating COVID-19 patients in Uganda. COVID-19 patients diagnosed at these hospitals and managed at home were followed up and contacted for in-depth telephone interviews. The data were analysed using thematic content analysis with the aid of NVIVO 12.0.0 (QRS International, Cambridge, MA). Participants experienced feelings of fear and anxiety: fear of death, fear of losing jobs, fear of infecting loved ones and fear of adverse events such as loss of libido. Participants also reported feelings of loneliness, hopelessness and depression on top of the debilitating and sometimes worsening symptoms. In addition to conventional medicines, participants took various kinds of home remedies and herbal concoctions to alleviate their symptoms. Furthermore, COVID-19 care resulted in a high economic burden, which persisted after the COVID-19 illness. Stigma was a major theme reported by participants. Participants recommended that COVID-19 care should include counselling before testing and during and after the illness to combat the fear and stigma associated with the diagnosis. Another recommendation was that health workers should carry out home visits to patients undergoing home-based care and that COVID-19 treatment should be free of charge. COVID-19 home-based care was associated with fear, anxiety, loneliness, depression, economic loss and stigma. Policymakers should consider various home-based follow-up strategies and strengthen counselling of COVID-19 patients at all stages of care.
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