Informal dementia care: The carer's lived experience at the divides between policy and practice.
Informal dementia care: The carer's lived experience at the divides between policy and practice.
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DOI：
10.1177/14713012221112234
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发表时间：
2022-10
影响因子：
2.4
通讯作者：
Zimmermann, Martina
中科院分区：
文献类型：
--
作者：
Britton, Anthony;Zimmermann, Martina
关键词：
今天，对当地社区一级的非正式痴呆症护理的支持对大多数照顾者来说并不奏效。照顾痴呆症患者的护理人员长期以来一直对缺乏授权的命名支持和有效的行动护理计划感到遗憾。借助文学写作和社会研究，我们在本文中认为，自从痴呆症在20世纪80年代成为西方的一种主要疾病以来，这些挑战就一直存在。基于这一历史背景，我们问：为什么这个问题在过去40年里一直存在？医疗保健政治和政策倡议如何回应这些要求？对于目前新冠肺炎加剧的护理危机，我们能从中学到什么？本文侧重于英语语境，根据一系列政策文件讨论这些正在进行的挑战，并询问是什么阻碍了这些政策举措的实施。在英格兰，地方当局负责为痴呆症提供支持。这篇文章聚焦于中部一个县的情况，在那里，我们中的一人(AB)已经游说当地政府十多年了。讨论结合了痴呆症护理的真实经历，这种情况因新冠肺炎大流行、随之而来的危机政治以及持续强调治愈而不是护理而加剧。我们发现，在两点上的缺失是对护理的主要挑战：卫生和社会护理之间的联合方法以及关于可用护理支助服务的足够信息，可通过授权的指定联系人获得。为了增强痴呆症护理的生活体验，在需要时提供一致的个人命名支持和专业护理支持，应成为当地实施护理政策的关键。
Support for informal dementia care at a local community level is not working for most carers today. Carers looking after a person with dementia have long lamented the absence of an empowered named support and an effectively actioned care plan. Drawing on literary writing and social research, we argue in this article that these challenges have existed since dementia emerged as a major condition in the West during the 1980s. Based on this historical context, we ask: Why has this issue persisted over the last four decades? How have healthcare politics and policy initiatives responded to these requests? And what can we learn from this for the current, COVID-19 exacerbated crisis of care? This article focuses on the English context, to discuss these ongoing challenges in the light of a series of policy papers, and to ask what is hampering the implementation of such policy initiatives. In England, local authorities are responsible for dementia support. This article focuses on the situation in a county in the Midlands where one of us (AB) has been lobbying local government for over a decade. The discussion contextualises the lived experience of dementia care within the situation exacerbated by the COVID-19 pandemic, ensuing politics of crises and persistent emphasis on cure over care. We find that the absence on two points centrally challenges care: a joined-up approach between health and social care and adequate information on available care support services, accessible through an empowered named contact. To enhance the lived experience of dementia care, consistent provision of individual named support and professional care support, as and when required, should become essential to local implementation of the care policy.
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影响因子：
5.9
作者：
Bonanad, Clara;Garcia-Blas, Sergio;Martinez-Selles, Manuel
通讯作者：
Martinez-Selles, Manuel
DOI：
10.1016/j.jagp.2020.10.009
发表时间：
2021-01
期刊：
The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
影响因子：
--
作者：
Altieri M;Santangelo G
通讯作者：
Santangelo G
影响因子：
7
作者：
Cohen, Gabriela;Russo, Maria Julieta;Allegri, Ricardo F.
通讯作者：
Allegri, Ricardo F.
影响因子：
2.6
作者：
Brayne, Carol;Kelly, Sarah
通讯作者：
Kelly, Sarah
影响因子：
3.4
作者：
Bokberg, Christina;Ahlstrom, Gerd;Karlsson, Staffan
通讯作者：
Karlsson, Staffan