Exploring support needs of people living with diabetes during the coronavirus COVID-19 pandemic: insights from a UK survey.
Exploring support needs of people living with diabetes during the coronavirus COVID-19 pandemic: insights from a UK survey.
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DOI：
10.1136/bmjdrc-2021-002162
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发表时间：
2021-06
影响因子：
4.1
通讯作者：
Whitmarsh A
中科院分区：
文献类型：
--
作者：
Sauchelli S;Bradley J;England C;Searle A;Whitmarsh A
冠状病毒 COVID-19 大流行从根本上损害了糖尿病等慢性病患者的医疗保健。政府为遏制病毒传播而实施的限制迫使人们突然调整生活方式。这项研究旨在了解这一流行病对糖尿病患者的影响，以及这些人对如何改进他们所获得的信息、建议和支持的看法。在第一次封锁和最初的宽松政策期间，一项在线匿名调查在英国各地进行了分发。该调查包括对糖尿病自我管理的信心、用于获取信息、建议和支持的资源以及如何改进这些方面的意见等问题。开放式问题捕捉主观体验。该调查由 773 名成年糖尿病患者完成（69.2% 为 1 型糖尿病，28.5% 为 2 型糖尿病）。疫情对自我管理信心的影响存在显着差异，其中最常见的是照顾自己心理健康的能力下降（37.0%的受访者），而最常见的是保持健康体重的信心提高（21.1%的受访者）。 41.2%的独居受访者表示没有得到任何外部支持。 37.2% 的人对医疗团队提供的信息、建议和支持的质量评价较差。受访者希望从他们的护理团队那里得到更多的沟通和量身定制的建议，从政府和新闻渠道获得清晰一致的信息，并从他们的个人网络和雇主那里更好地了解糖尿病及其挑战。适应 COVID-19 大流行给糖尿病患者的心理健康和福祉带来了压力。糖尿病护理团队必须获得援助来支持这些人，而不冒着获得医疗保健方面进一步不平等的风险。为个人网络和雇主提供糖尿病知识和支持自我管理的技能可能会减轻国家卫生服务的负担。
The coronavirus COVID-19 pandemic has radically compromised healthcare for people living with chronic conditions such as diabetes. Government-imposed restrictions to contain the spread of the virus have forced people to suddenly adjust their lifestyle. This study aimed to capture the impact of the pandemic on people living with diabetes and the views of these individuals on ways in which the information, advice and support they are receiving could be improved. An online anonymous survey was distributed across the UK during the first lockdown and initial easing. The survey comprised questions about confidence in diabetes self-management, resources used to obtain information, advice and support, and opinions on how these could be improved. Open-ended questions captured subjective experiences. The survey was completed by 773 adults with diabetes (69.2% type 1, 28.5% type 2). There was notable variability in the impact of the pandemic on confidence in self-management, with confidence having deteriorated most commonly in the ability to take care of own mental well-being (37.0% respondents) and improved most commonly in maintaining a healthy weight (21.1% respondents). 41.2% of respondents living alone reported not receiving any outside support. The quality of information, advice and support received from the healthcare team was rated poorly by 37.2%. Respondents sought greater communication and tailored advice from their care team, clear and consistent information from the government and news channels, and improved understanding of diabetes and its challenges from their personal networks and employers. Adjusting to the COVID-19 pandemic has strained the mental health and well-being of people living with diabetes. Diabetes care teams must receive assistance to support these individuals without risking further inequalities in access to healthcare. Equipping personal networks and employers with knowledge on diabetes and skills to support self-management may reduce the burden on the National Health Service.
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DOI：
10.3390/ijerph17176237
发表时间：
2020-08-27
影响因子：
--
作者：
Ammar A;Chtourou H;Boukhris O;Trabelsi K;Masmoudi L;Brach M;Bouaziz B;Bentlage E;How D;Ahmed M;Mueller P;Mueller N;Hsouna H;Aloui A;Hammouda O;Paineiras-Domingos LL;Braakman-Jansen A;Wrede C;Bastoni S;Pernambuco CS;Mataruna L;Taheri M;Irandoust K;Khacharem A;Bragazzi NL;Strahler J;Washif JA;Andreeva A;Khoshnami SC;Samara E;Zisi V;Sankar P;Ahmed WN;Romdhani M;Delhey J;Bailey SJ;Bott NT;Gargouri F;Chaari L;Batatia H;Ali GM;Abdelkarim O;Jarraya M;Abed KE;Souissi N;Gemert-Pijnen LV;Riemann BL;Riemann L;Moalla W;Gómez-Raja J;Epstein M;Sanderman R;Schulz S;Jerg A;Al-Horani R;Mansi T;Jmail M;Barbosa F;Ferreira-Santos F;Šimunič B;Pišot R;Pišot S;Gaggioli A;Zmijewski P;Apfelbacher C;Steinacker J;Saad HB;Glenn JM;Chamari K;Driss T;Hoekelmann A;On Behalf Of The Eclb-Covid Consortium
通讯作者：
On Behalf Of The Eclb-Covid Consortium
影响因子：
4.8
作者：
Alessi, Janine;de Oliveira, Giovana Berger;Telo, Gabriela Heiden
通讯作者：
Telo, Gabriela Heiden
影响因子：
44.5
作者：
Holman, Naomi;Knighton, Peter;Valabhji, Jonathan
通讯作者：
Valabhji, Jonathan
影响因子：
16.2
作者：
Fleming, G. Alexander;Petrie, John R.;Heinemann, Lutz
通讯作者：
Heinemann, Lutz
影响因子：
0.6
作者：
Kilvert, Anne;Wilmot, Emma G.;Fox, Charles
通讯作者：
Fox, Charles