Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.
Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity.
复制标题
DOI：
10.1016/j.pedhc.2019.11.009
复制
发表时间：
2020-07
期刊：
影响因子：
--
通讯作者：
Jacob E
中科院分区：
文献类型：
--
作者：
Bravo L;Killela MK;Reyes BL;Santos KMB;Torres V;Huang CC;Jacob E
患有慢性疾病和医疗复杂性（CIMC）的儿童需要频繁的急性医疗保健，从而增加了医疗保健费用。我们评估了CIMC儿童的自我管理，自我效能和健康相关生活质量（HRQOL）的父母/儿童的看法。父母/儿童（n=32对）在出院前完成自我管理（PAM）、HRQOL（PedsQL）和自我效能量表（SES）三项测量。父母（56.3%）和儿童（40.6%）报告自我管理水平中等。HRQOL与自我管理（r = 0.441，p=0.12）和自我效能（r = 0.464，p=0.008）相关。至少25%至50%的人报告子量表得分较低（<70），表明在身体，情感，社交和精神领域存在一些问题。我们的研究结果支持评估，不仅是身体，但也在CIMC儿童的心理，情感和社会需求。我们建议制定和测试策略，促进自我管理和自我效能，以最大限度地提高HRQOL和改善CIMC儿童的健康结果
Children with chronic illnesses and medical complexity (CIMC) require frequent acute health care use thereby increasing medical care costs. We evaluated parent/child perceptions of self-management, self-efficacy, and health related quality of life (HRQOL) in children with CIMC. Parents/children (n=32 pairs) completed three measures on self-management (PAM), HRQOL (PedsQL), and Self-Efficacy Scale (SES) prior to discharge from hospital. Parents (56.3%) and children (40.6%) reported moderate levels of self-management. HRQOL was correlated with both self-management (r = 0.441, p=0.12) and self-efficacy (r = 0.464, p=0.008). At least 25% to 50% reported low subscale scores (<70) indicating having some problems with physical, emotional, social, and mental domains. Our findings support assessment of, not only physical, but also mental, emotional, and social needs in children with CIMC. We recommend development and testing strategies promoting self-management and self-efficacy to maximize HRQOL and improve health outcomes in children with CIMC
登录
查看更多内容
影响因子：
--
作者：
Kuo, Dennis Z.;Cohen, Eyal;Agrawal, Rishi;Berry, Jay G.;Casey, Patrick H.
通讯作者：
Casey, Patrick H.
影响因子：
0.9
作者：
Ott, J;Greening, L;DeBell, WK
通讯作者：
DeBell, WK
DOI：
10.3109/01460862.2013.855844
发表时间：
2014-01-01
影响因子：
2.1
作者：
Hudson, Shannon M.;Newman, Susan D.;Laken, Marilyn A.
通讯作者：
Laken, Marilyn A.
影响因子：
5.7
作者：
Mitchell, Suzanne E.;Gardiner, Paula M.;Paasche-Orlow, Michael K.
通讯作者：
Paasche-Orlow, Michael K.
影响因子：
7.6
作者：
Crosby, Lori E.;Joffe, Naomi E.;Britto, Maria T.
通讯作者：
Britto, Maria T.