Patient-Reported Outcomes Measurement Information System Tools for Collecting Patient-Reported Outcomes in Children With Juvenile Arthritis.
Patient-Reported Outcomes Measurement Information System Tools for Collecting Patient-Reported Outcomes in Children With Juvenile Arthritis.
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DOI：
10.1002/acr.22937
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发表时间：
2017-03
影响因子：
4.7
通讯作者：
Weiss, Pamela F.
中科院分区：
文献类型：
--
作者：
Brandon, Timothy G.;Becker, Brandon D.;Bevans, Katherine B.;Weiss, Pamela F.
评估儿科患者报告结果测量信息系统® (PROMIS®) 仪器在幼年特发性关节炎 (JIA) 患者和家长代理人群体中的精确度和结构有效性。 JIA 患者和 JIA 患者父母的方便样本完成了八个领域的 PROMIS 工具：愤怒、焦虑、抑郁症状、疲劳、行动能力、疼痛干扰、同伴关系和上肢功能。简短形式和计算机化适应性测试（CAT）分数来自项目库的回答。原始分数被转换为具有相应标准误差 (SE) 的标准化 T 分数。将非活动性疾病与活动性疾病之间的区分作为每种措施构建有效性的指标进行评估。绘制 SE 来评估每种仪器的相对精度。使用组内相关性（ICC）评估患者与家长的一致性。 228 名患者和 223 名家长参与其中，每个领域提供 71-78 条回复。患者和家长报告的愤怒、疲劳、行动能力和疼痛干扰评分在非活动性和活动性疾病患者之间存在显着差异。仅针对家长报告，焦虑、抑郁症状和同伴关系因疾病活动水平而异。简短表格和 CAT 在每个结果的整个范围内提供了与完整项目库相当的可靠性。患者与家长的一致性范围为 ICC=0.3 至 0.8。与缩写形式相比，CAT 并未减少任何域的项目数量。 PROMIS 仪器的精确度和区分能力取决于幼年特发性关节炎儿童的健康领域和报告类型（自我报告与家长代理报告）。患者与家长的不同程度的一致性强调了在综合健康结果评估中考虑两种观点的重要性。
To evaluate the precision and construct validity of pediatric Patient Reported Outcomes Measurement Information System® (PROMIS®) instruments in a population of juvenile idiopathic arthritis (JIA) patients and parent proxies. A convenience sample of JIA patients and parents of JIA patients completed PROMIS instruments for eight domains: anger, anxiety, depressive symptoms, fatigue, mobility, pain interference, peer relationships, and upper extremity function. Short form and computerized adaptive test (CAT) scores were derived from item bank responses. Raw scores were translated to standardized T-scores with corresponding standard errors (SEs). Discrimination between inactive versus active disease was evaluated as an indicator of each measures’ construct validity. SEs were plotted to evaluate each instrument’s relative precision. Patient-parent concordance was assessed using intraclass correlations (ICC). 228 patients and 223 parents participated, providing 71–78 responses per domain. Patient- and parent-reported anger, fatigue, mobility, and pain interference scores significantly differed between those with inactive and active disease. Anxiety, depressive symptoms, and peer relationships differed by disease activity levels for parent-report only. Short forms and CATs provided comparable reliability to the full item banks across the full range of each outcome. Patient-parent agreement ranged from ICC=0.3 to 0.8. CAT did not reduce the number of items for any domain compared to the short form. Precision and discriminatory abilities of PROMIS instruments depend on health domain and report type (self-report versus parent proxy-report) for children with JIA. Varying levels of patient-parent concordance reinforces the importance of considering both perspectives in comprehensive health outcomes assessments.
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影响因子：
--
作者：
HOWE, S;LEVINSON, J;LOVELL, D
通讯作者：
LOVELL, D
影响因子：
3.6
作者：
Irwin, Debra E.;Gross, Heather E.;DeWalt, Darren A.
通讯作者：
DeWalt, Darren A.
DOI：
10.1002/art.22900
发表时间：
2007-08-15
期刊：
ARTHRITIS & RHEUMATISM-ARTHRITIS CARE & RESEARCH
影响因子：
--
作者：
Filocamo, Giovanni;Sztainbok, Flavio;Ravelli, Angelo
通讯作者：
Ravelli, Angelo
影响因子：
7.2
作者：
DeWitt, Esi Morgan;Stucky, Brian D.;Thissen, David;Irwin, Debra E.;Langer, Michelle;Varni, James W.;Lai, Jin-Shei;Yeatts, Karin B.;DeWalt, Darren A.
通讯作者：
DeWalt, Darren A.
影响因子：
5.5
作者：
Filocamo, Giovanni;Schiappapietra, Benedetta;Ravelli, Angelo
通讯作者：
Ravelli, Angelo