A Health Literate Approach to Address Health Disparities: a Virtual Program for Parents of Children with Sickle Cell Trait.
A Health Literate Approach to Address Health Disparities: a Virtual Program for Parents of Children with Sickle Cell Trait.
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DOI：
10.1080/17538068.2022.2026056
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发表时间：
2022
影响因子：
--
通讯作者：
Creary, Susan E.
中科院分区：
文献类型：
--
作者：
Abrams, Mary Ann;Zajo, Kristin N.;Beeman, Chase M.;O'Brien, Sarah H.;Chan, Peter K.;Shen, Yvette;McCorkle, Ben;Johnson, Latrice;Chisolm, Deena;Barnard-Kirk, Toyetta;Mahan, John D.;Christian-Rancy, Myra;Creary, Susan E.
每年出生的非洲裔美国人中约有8%患有镰状细胞性状（SCT），这是一个公共卫生问题，如果SCT患者不知道并且无法获得有关生殖影响的可理解信息，则可能导致健康差异。大流行前，俄亥俄州为受SCT影响儿童的父母提供了面对面的SCT教育，但许多人没有参加。那些健康素养有限的人（HL）不太可能获得高知识。我们使用HL为重点的评估这种教育开发一个虚拟程序（SCTaware），以传达清晰，可操作的信息，并促进知识的保留。2019年招募了7名讲英语的父母，其中3名患有有限的HL，进行现场录像和SCT知识评估。临床医生、HL专家、教育工作者、遗传咨询师和家长利益相关者（评估者）审查了会议、评估和伴随的视觉效果。评价员：观察到父母提出的问题很少;注意到未定义的技术术语、封闭式问题、关键概念遗漏以及视觉效果的有限解释，在可理解性、可操作性和清晰度方面得分较低;并开发了SCTaware用于个人视频会议交付（知识目标;简单的语言指南; HL知情的沟通策略;在可理解性、可操作性和清晰度方面得分很高的新视觉效果;教育后的叙述版本;标准化教育培训）。使用以HL为中心的评估，我们的多元化团队创建了一个有前途的虚拟SCT教育计划，解决了影响差异风险人群的共同问题。鉴于虚拟教育可能会在大流行后继续进行，并且有限的HL很常见，这种方法对于其他公共卫生教育项目，特别是那些过渡到虚拟形式的项目，传达清晰，可操作的信息并促进健康公平可能是必不可少的和可复制的。
Approximately 8% of African Americans born annually have sickle cell trait (SCT), a public health concern that may contribute to health disparities if individuals with SCT do not know it and lack access to understandable information about reproductive implications. Pre-pandemic, Ohio offered in-person SCT education for parents of SCT-affected children but many did not attend. Those with limited health literacy (HL) were less likely to achieve high knowledge. We used a HL-focused evaluation of this education to develop a virtual program (SCTaware) to communicate clear, actionable information and promote knowledge retention. Seven English-speaking parents, three with limited HL, were recruited in 2019 for in-person session videotaping and SCT knowledge assessments. Clinicians, HL experts, educators, genetic counselors, and parent stakeholders (evaluators) reviewed sessions, assessments, and accompanying visuals. Evaluators: observed parents asked few questions; noted undefined technical terms, closed questions, key concept omission, and limited explanation of visuals scoring low for understandability, actionability, and clarity; and developed SCTaware for individual videoconference delivery (knowledge objectives; plain language guide; HL-informed communication strategies; new visuals scoring highly for understandability, actionability, and clarity; narrated post-education version; standardized educator training). Using a HL-focused evaluation, our diverse team created a promising virtual SCT education program addressing a common issue affecting populations at risk for disparities. Given virtual education will likely continue post-pandemic and limited HL is common, this approach may be essential and replicable for other public health education programs, especially those transitioning to virtual formats, to convey clear, actionable information and promote health equity.
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DOI：
10.1002/ajmg.c.30160
发表时间：
2008-02-15
影响因子：
3.1
作者：
Kavanagh, Patricia L.;Wang, C. Jason;Bauchner, Howard
通讯作者：
Bauchner, Howard
影响因子：
2
作者：
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Varga E
影响因子：
3.5
作者：
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通讯作者：
Brach, Cindy
影响因子：
4.4
作者：
Weiss, BD;Mays, MZ;Hale, FA
通讯作者：
Hale, FA
DOI：
10.1016/j.pedn.2017.05.012
发表时间：
2017-09-01
影响因子：
2.4
作者：
Perry, Elizabeth L.;Carter, Patricia A.;Johnson, Karen E.
通讯作者：
Johnson, Karen E.