Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education.
Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education.
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DOI：
10.1002/mgg3.327
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发表时间：
2017-11
影响因子：
2
通讯作者：
Varga E
中科院分区：
文献类型：
--
作者：
Creary S;Adan I;Stanek J;O'Brien SH;Chisolm DJ;Jeffries T;Zajo K;Varga E
尽管普遍筛查可以在婴儿期检测镰状细胞特征（SCT），但只有16%的SCT美国人知道他们的状态。为了提高SCT状态意识，需要对患者及其家属进行有效的教育。本研究的目的是评估护理人员在亲自进行SCT教育之前和之后的SCT知识。一位训练有素的教育工作者为全国儿童医院接受SCT的婴儿的护理人员提供亲自SCT教育。从2015年8月至2016年7月，招募了血红蛋白S性状婴儿的主要讲英语的护理人员，并在接受教育前后完成了健康素养评估和SCT知识评估（SCTKA）。如果可以联系到护理人员，则在≥6个月后再次重复SCTKA。在113名护理人员中，38.1%在教育前SCTKA评分较高（≥75%），但90.3%在教育后获得高分。与教育后得分较高的护理人员相比，教育后SCTKA得分较低的护理人员的健康素养（P = 0.029）和基线SCTKA得分（P = 0.003）显著较低。在≥6个月时，照顾者的评分显著高于基线（P = 0.014），但只有73.3%的评分≥ 75%。我们的研究结果表明，照顾者的基线SCT知识是低的，改善与人的教育，但可能会随着时间的推移而下降。教育后SCT知识水平不高的护理人员的健康素养和基线知识水平较低。未来的研究应确定是否调整面对面教育以适应护理人员的健康素养和知识水平，从而在所有护理人员和更多了解其SCT状态的个人中获得高水平和持续的SCT知识。
Despite universal screening that detects sickle cell trait (SCT) in infancy, only 16% of Americans with SCT know their status. To increase SCT status awareness, effective education for patients and their families is needed. The objective of this study was to assess caregivers’ SCT knowledge before and after an in‐person SCT education session. A trained educator provides in‐person SCT education to caregivers of referred infants with SCT at Nationwide Children's Hospital. From August 2015 to July 2016, primarily English‐speaking caregivers of infants with hemoglobin S‐trait were recruited and completed a health literacy assessment and a SCT knowledge assessment (SCTKA) before and after receiving education. Caregivers repeated the SCTKA again after ≥6 months, if they could be contacted. Thirty‐eight (38.1%) percent of 113 caregivers had high SCTKA scores (≥75%) before education but 90.3% achieved high scores after education. Caregivers with low SCTKA scores after education had significantly lower health literacy (P = 0.029) and baseline SCTKA scores (P = 0.003) compared to those with higher scores after education. At ≥6 months, caregivers’ scores were significantly higher (P = 0.014) than baseline, but only 73.3% scored ≥75%. Our results suggest that caregivers’ baseline SCT knowledge is low, improves with in‐person education but may decline with time. Caregivers who do not achieve high SCT knowledge after education had lower health literacy and baseline knowledge. Future studies should determine if adapting in‐person education to caregivers’ health literacy and knowledge levels results in high and sustained SCT knowledge among all caregivers and more individuals who know their SCT status.
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DOI：
10.1002/ajmg.c.30160
发表时间：
2008-02-15
影响因子：
3.1
作者：
Kavanagh, Patricia L.;Wang, C. Jason;Bauchner, Howard
通讯作者：
Bauchner, Howard
影响因子：
4.3
作者：
Kim, Su Hyun;Lee, Anna
通讯作者：
Lee, Anna
影响因子：
158.5
作者：
PLATT, OS;BRAMBILLA, DJ;KLUG, PP
通讯作者：
KLUG, PP
影响因子：
8
作者：
Johnson, K;Lloyd-Puryear, MA;Therrell, BL
通讯作者：
Therrell, BL
影响因子：
20.3
作者：
Liem, Robert I.;Chan, Cheeling;Carnethon, Mercedes R.
通讯作者：
Carnethon, Mercedes R.