Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies.
Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies.
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年轻人对肾衰竭生活的看法：系统评价和定性研究的主题综合。
DOI：
10.1136/bmjopen-2017-019926
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发表时间：
2018-01-10
期刊：
影响因子：
2.9
通讯作者：
Owen-Smith A
中科院分区：
文献类型：
--
作者：
Bailey PK;Hamilton AJ;Clissold RL;Inward CD;Caskey FJ;Ben-Shlomo Y;Owen-Smith A
在广泛的健康指标上，年轻人的表现比年轻的青少年或老年人差。患有肾功能衰竭等慢性疾病的人是一个特别脆弱的群体，与儿童和老年人相比，他们的预后较差。了解接受肾脏替代治疗 (RRT) 如何影响年轻人的生活可能有助于我们更好地为这些人做好 RRT 的准备和支持，并改善治疗结果。本研究旨在综合描述年轻人肾衰竭和 RRT 的心理社会影响经历的研究。一项系统文献综述确定了定性研究，报告了 16-30 岁接受 RRT 的人群对肾衰竭心理社会影响的看法。检索电子数据库（包括 Medline/EMBASE/PsycINFO/ASSIA）至 2017 年 11 月的全文论文。使用报告定性健康研究综合标准（COREQ）框架评估每项研究报告的透明度。使用关键评估技能计划定性检查表评估质量。进行了归纳主题综合。纳入了来自 5 个不同国家的 7 项研究，其中包括 123 名接受 RRT 的年轻人。报告的全面性各不相同：研究报告了 32 个 COREQ 检查表项目中的 9-22 个。确定了关于肾衰竭对年轻人影响的三个全球主题：（1）渴望正常的差异，（2）梦想和抱负受挫或减弱，以及（3）不确定性和阈限。这些反映了五个组织主题：（1）外表和身体形象，（2）活动和参与，（3）教育中断和成绩不佳，（4）职业抱负和就业困难，以及（5）社会孤立和亲密关系。在不同的国家和不同的医疗环境中，接受 RRT 的年轻人即使在移植后也会经历差异和限制。需要量身定制的社会和心理支持，让年轻人在接受 RRT 的同时体验健康，而不是让生活陷入停滞。
Young adults fare worse than younger adolescents or older adults on a broad range of health indicators. Those with a chronic illness such as renal failure are a particularly vulnerable group, who experience poor outcomes compared with both children and older adults. Understanding how being in receipt of renal replacement therapy (RRT) affects the lives of young adults might help us to better prepare and support these individuals for and on RRT, and improve outcomes. This study aimed to synthesise research describing young adults’ experiences of the psychosocial impact of kidney failure and RRT. A systematic literature review identified qualitative research reporting the perspectives of people aged 16–30 years receiving RRT on the psychosocial impact of renal failure. Electronic databases (including Medline/EMBASE/PsycINFO/ASSIA) were searched to November 2017 for full-text papers. The transparency of reporting of each study was assessed using the Consolidated Criteria for Reporting Qualitative Health Research (COREQ) framework. Quality was assessed using the Critical Appraisal Skills Programme qualitative checklist. An inductive thematic synthesis was undertaken. Seven studies from five different countries were included, comprising 123 young adults receiving RRT. Comprehensiveness of reporting was variable: studies reported 9–22 of the 32 COREQ-checklist items. Three global themes about the impact of kidney failure on young adults were identified: (1) difference desiring normality, (2) thwarted or moderated dreams and ambitions, and (3) uncertainty and liminality. These reflected five organising themes: (1) physical appearance and body image, (2) activity and participation, (3) educational disruption and underachievement, (4) career ambitions and employment difficulties, and (5) social isolation and intimate relationships. Across different countries and different healthcare settings, young adults on RRT experience difference and liminality, even after transplantation. Tailored social and psychological support is required to allow young adults to experience wellness while in receipt of RRT, and not have life on hold.
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DOI：
10.2215/cjn.10561015
发表时间：
2016-07-01
影响因子：
9.8
作者：
Reid, Claire;Seymour, Julie;Jones, Colin
通讯作者：
Jones, Colin
影响因子：
1.3
作者：
Kim, Sumi;Choi, Heeseung
通讯作者：
Choi, Heeseung
影响因子：
2.5
作者：
MacNeill, Stephanie J.;Casula, Anna;Castledine, Clare
通讯作者：
Castledine, Clare
影响因子：
6.1
作者：
EHRICH, JHH;RIZZONI, G;WING, AJ
通讯作者：
WING, AJ
DOI：
10.2215/cjn.04760517
发表时间：
2017-12-07
影响因子：
9.8
作者：
Hamilton, Alexander J.;Clissold, Rhian L.;Ben-Shlomo, Yoav
通讯作者：
Ben-Shlomo, Yoav