Implementing the psychosocial standards in pediatric cancer: Current staffing and services available.

Implementing the psychosocial standards in pediatric cancer: Current staffing and services available.
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DOI:
10.1002/pbc.26634
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发表时间:
2017-11
影响因子:
3.2
通讯作者:
Kazak AE
Kazak AE
中科院分区:
医学3区
文献类型:
--
作者:
Scialla MA;Canter KS;Chen FF;Kolb EA;Sandler E;Wiener L;Kazak AE

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2015年发布了15项为癌症儿童及其家人提供心理社会关怀的循证标准。这些标准涵盖了广泛的主题和情况,并要求实施合格的多学科工作人员。本文介绍了美国儿科肿瘤学项目的心理社会工作人员的可用性和现有做法的数据,提供的数据可用于倡导扩大服务并为标准的实施做准备。来自144个项目的多达3名医疗保健专业人员(回复率为72%)参与了2016年6月至12月进行的一项在线调查。有99名儿科肿瘤学家负有临床领导责任(医务主任/临床主任),132名儿科肿瘤科心理社会领导人(心理社会服务主任/经理/最高级别工作人员),58名儿科肿瘤学管理人员(行政主任/业务主管/运营主任)。主要结果是心理社会工作人员的数量和类型、心理社会实践以及在提供心理社会护理方面确定的挑战。超过90%的项目有社会工作者和儿童生活专家,他们为癌症儿童及其家人提供护理。有心理学家(60%)、神经心理学家(31%)或精神病学家(19%)的课程较少。心理社会护理方面的挑战主要基于与筹资和偿还有关的务实问题。大多数参与的儿科肿瘤学项目似乎至少有实施某些标准所需的基本人员配备水平。然而,缺乏一个更全面的多学科团队可能是实施全套标准的一个障碍。
Fifteen evidence-based Standards for Psychosocial Care for Children with Cancer and their Families were published in 2015. The Standards cover a broad range of topics and circumstances and require qualified multidisciplinary staff to be implemented. This paper presents data on the availability of psychosocial staff and existing practices at pediatric oncology programs in the United States, providing data that can be used to advocate for expanded services and prepare for implementation of the Standards. Up to three healthcare professionals from 144 programs (72% response rate) participated in an online survey conducted June – December 2016. There were 99 pediatric oncologists with clinical leadership responsibility (Medical Director/Clinical Director), 132 psychosocial leaders in pediatric oncology (Director of Psychosocial Services/Manager/most senior staff member), and 58 administrators in pediatric oncology (Administrative Director/Business Administrator/Director of Operations). The primary outcomes were number and type of psychosocial staff, psychosocial practices, and identified challenges in the delivery of psychosocial care. Over 90% of programs have social workers and child life specialists who provide care to children with cancer and their families. Fewer programs have psychologists (60%), neuropsychologists (31%) or psychiatrists (19%). Challenges in psychosocial care are primarily based on pragmatic issues related to funding and reimbursement. Most participating pediatric oncology programs appear to have at least the basic level of staffing necessary to implement of some of the Standards. However, the lack of a more comprehensive multidisciplinary team is a likely barrier in the implementation of the full set of Standards.
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