Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube.
Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube.
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DOI：
10.1371/journal.pone.0110171
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发表时间：
2014
期刊：
影响因子：
3.7
通讯作者：
Elwyn G
中科院分区：
文献类型：
--
作者：
Naslund JA;Grande SW;Aschbrenner KA;Elwyn G
越来越多的健康状况不同的人转向社交媒体分享他们的疾病经历或寻求有类似健康问题的其他人的建议。这种非结构化的媒介可能代表了一个平台，在这个平台上，患有严重精神疾病的个人自然地提供和接受同伴的支持。同伴支持包括一个相互给予和接受的系统，在这个系统中，患有严重精神疾病的人可以为面临类似挑战的其他人提供希望，陪伴和鼓励。在这项研究中，我们探讨了严重精神疾病患者上传视频到YouTube，并发布和回应评论作为自然发生的同伴支持的一种形式的现象。我们还考虑了自我披露以及在YouTube上与他人互动的潜在风险和好处。为了解决这些问题，我们使用了定性调查，通过在线民族志中的新兴技术。我们分析了自认为患有精神分裂症、情感障碍或双相情感障碍的个人上传的19个视频的3,044条评论。 我们在四个主题中发现了同伴支持：最大限度地减少孤立感并提供希望;通过同伴交流和互惠寻求支持;分享应对严重精神疾病日常挑战的策略;从药物使用和寻求心理健康护理的共同经历中学习。这些广泛的主题与公认的严重精神疾病同伴支持的概念是一致的，这是一个自愿的过程，旨在通过分享经验和培养社区意识来实现包容和相互进步。我们的数据表明，那些发布评论或上传视频的人似乎忽视了YouTube上缺乏匿名性以及被识别为严重精神疾病患者的相关风险。这个平台是否能为更广泛的严重精神疾病患者群体带来益处仍不确定。
Increasingly, people with diverse health conditions turn to social media to share their illness experiences or seek advice from others with similar health concerns. This unstructured medium may represent a platform on which individuals with severe mental illness naturally provide and receive peer support. Peer support includes a system of mutual giving and receiving where individuals with severe mental illness can offer hope, companionship, and encouragement to others facing similar challenges. In this study we explore the phenomenon of individuals with severe mental illness uploading videos to YouTube, and posting and responding to comments as a form of naturally occurring peer support. We also consider the potential risks and benefits of self-disclosure and interacting with others on YouTube. To address these questions, we used qualitative inquiry informed by emerging techniques in online ethnography. We analyzed n = 3,044 comments posted to 19 videos uploaded by individuals who self-identified as having schizophrenia, schizoaffective disorder, or bipolar disorder. We found peer support across four themes: minimizing a sense of isolation and providing hope; finding support through peer exchange and reciprocity; sharing strategies for coping with day-to-day challenges of severe mental illness; and learning from shared experiences of medication use and seeking mental health care. These broad themes are consistent with accepted notions of peer support in severe mental illness as a voluntary process aimed at inclusion and mutual advancement through shared experience and developing a sense of community. Our data suggest that the lack of anonymity and associated risks of being identified as an individual with severe mental illness on YouTube seem to be overlooked by those who posted comments or uploaded videos. Whether or not this platform can provide benefits for a wider community of individuals with severe mental illness remains uncertain.
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