HIV status disclosure to families for social support in South Africa (NIMH Project Accept/HPTN 043).

HIV status disclosure to families for social support in South Africa (NIMH Project Accept/HPTN 043).
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DOI:
10.1080/09540121.2013.819400
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发表时间:
2014-02
期刊:
影响因子:
1.7
通讯作者:
Groves AK
Groves AK
中科院分区:
医学4区
文献类型:
--
作者:
Maman S;van Rooyen H;Groves AK

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关于艾滋病毒感染者/艾滋病患者(PLWHA)艾滋病毒状况披露的文献主要是关于向性伴侣披露的比率、障碍和后果的研究,因为假设伴侣披露的预防性健康益处。披露艾滋病毒感染状况可以增加社会支持和对艾滋病毒/艾滋病感染者的其他积极心理社会结果,但披露也可能与负面的社会结果有关,包括耻辱、歧视和暴力。这篇文章的目的是描述艾滋病毒感染者的艾滋病状况披露叙述生活在南非。在三年的时间里,对13名艾滋病毒/艾滋病感染者(11名妇女,2名男子)进行了30次深入访谈。我们通过询问他们选择向谁披露,他们如何向这些人披露,以及这些人如何反应来探索PLWHA的披露叙述。叙述侧重于向家庭成员披露,对向性伴侣披露的讨论相对较少。参与者通常首先向一位值得信赖的家庭成员透露,并且在与其他人分享之前,诊断的消息会与这个人保持很长一段时间。这位家庭成员帮助艾滋病毒/艾滋病感染者科普他们被诊断的消息,并帮助他们做好向他人透露的准备。向伴侣透露的动机主要是希望鼓励伴侣进行艾滋病毒检测。两名参与者描述了伴侣在披露后的公开负面反应,并且该样本中没有一名PLWHA描述了披露后与伴侣的非常支持的关系。家庭成员在这些艾滋病毒感染者的叙述中发挥的关键作用强调了在艾滋病毒咨询协议中需要更加注重向家庭披露社会支持。
Literature on HIV status disclosure among persons living with HIV/AIDS (PLWHA) is dominated by research on the rates, barriers and consequences of disclosure to sexual partners because of the assumed preventive health benefits of partner disclosure. Disclosure of HIV status can lead to an increase in social support and other positive psychosocial outcomes for PLWHA, but disclosure can also be associated with negative social outcomes including stigma, discrimination and violence. The purpose of this article is to describe the HIV status disclosure narratives of PLWHA living in South Africa. Thirty in-depth interviews were conducted with 13 PLWHA (11 women, 2 men) over a three year time period. We explored disclosure narratives of the PLWHA through questions about who they chose to disclose to, how they disclosed to these individuals, and how these individuals reacted. Narratives focused on disclosure to family members and contained relatively little discussion of disclosure to sexual partners. Participants often disclosed first to one trusted family member, and news of the diagnosis remained with this person for a long period of time, prior to sharing with others. This family member helped the PLWHA cope with the news of their diagnosis and prepared them to disclose to others. Disclosure to one’s partner was motivated primarily by a desire to encourage partners to test for HIV. Two participants described overtly negative reactions from a partner upon disclosure, and none of the PLWHA in this sample described very supportive relationships with their partners after disclosure. The critical role that family members played in the narratives of these PLWHA emphasizes the need for a greater focus on disclosure to families for social support in HIV counseling protocols.
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