"It's a cause I believe in": factors motivating participation and engagement in longitudinal, respiratory-focused research studies.
"It's a cause I believe in": factors motivating participation and engagement in longitudinal, respiratory-focused research studies.
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DOI：
10.1186/s12890-023-02582-6
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发表时间：
2023-08-04
影响因子：
3.1
通讯作者：
中科院分区：
文献类型：
--
作者：
任何前瞻性队列研究成功的关键是有效地招募和留住参与者，但影响千禧一代年轻人参与研究的具体因素尚不清楚。这项定性研究的目的是确定动机参与和参与纵向研究的因素，重点是不同群体的年轻人的呼吸健康。我们进行了定性，半结构化的采访，50名年轻的成年人参与者（年龄25-35岁）的因素影响他们参与纵向研究。主题分析被用来开发，组织和制表的频率的关键主题。在探索性分析中，我们检查了关键主题在种族、民族或社会经济群体中的分布模式。与会者确定了几个关键的主题，影响他们参与纵向研究的意愿。这些因素包括研究产生的健康相关益处（对个人和整个社会），与进行研究的机构和研究团队相关的因素，对不道德和/或不代表性研究设计的担忧，以及参与研究的障碍。某些因素可能对代表性不足的群体更具影响力，包括对数据隐私和保密性的担忧。在这个多样化的年轻人群体中，我们确定了激励参与的特定因素，并预测了专注于呼吸健康的纵向研究的高参与度。实施并将这些因素纳入研究方案可以改善招募和保留，包括历史上在研究中代表性不足的参与者。在线版本包含补充材料，可通过10.1186/s12890-023-02582-6获得。
Key to the success of any prospective cohort study is the effective recruitment and retention of participants, but the specific factors that influence younger adults of the Millennial generation to participate in research are not well-understood. The objective of this qualitative study was to identify factors that motivated participation and engagement in longitudinal research studies focused on respiratory health among a diverse group of young adults. We conducted qualitative, semi-structured interviews with 50 younger adult participants (aged 25–35 years) regarding factors influencing their participation in longitudinal research studies. Thematic analysis was used to develop, organize, and tabulate the frequency of key themes. In exploratory analyses, we examined for patterns in the distribution of key themes across racial, ethnic, or socioeconomic groups. Participants identified several key themes that affected their willingness to participate in longitudinal studies. These included the health-related benefits generated by research (both to the individual and to society at-large), factors related to the institution and study team conducting the research, concerns regarding unethical and/or unrepresentative study design, and barriers to participation in research. Certain factors may be more impactful to underrepresented groups, including concerns regarding data privacy and confidentiality. In this diverse group of younger adults, we identified specific factors that motivated participation and predicted high engagement in longitudinal research studies focused on respiratory health. Implementing and integrating these factors into study protocols may improve recruitment and retention, including among participants who are historically underrepresented in research. The online version contains supplementary material available at 10.1186/s12890-023-02582-6.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
加强少数族裔招募和保留肺部，重症监护和睡眠医学临床研究：官方美国胸腔社会研究声明。
DOI：
10.1164/rccm.202105-1210st
发表时间：
2021-08-01
影响因子：
24.7
作者：
Thakur N;Lovinsky-Desir S;Appell D;Bime C;Castro L;Celedón JC;Ferreira J;George M;Mageto Y;Mainous III AG;Pakhale S;Riekert KA;Roman J;Ruvalcaba E;Sharma S;Shete P;Wisnivesky JP;Holguin F
通讯作者：
Holguin F
影响因子：
3.2
作者：
Rosas, Lisa G.;Nasrallah, Catherine;Martin, Christopher
通讯作者：
Martin, Christopher
影响因子：
2.7
作者：
Friedman, Daniela B.;Foster, Caroline;Kim, Sei-Hill
通讯作者：
Kim, Sei-Hill
DOI：
10.1056/nejmoa1012848
发表时间：
2012-01-26
期刊：
The New England journal of medicine
影响因子：
--
作者：
Berry JD;Dyer A;Cai X;Garside DB;Ning H;Thomas A;Greenland P;Van Horn L;Tracy RP;Lloyd-Jones DM
通讯作者：
Lloyd-Jones DM