Problems in transition and quality of care: perspectives of breast cancer survivors.

Problems in transition and quality of care: perspectives of breast cancer survivors.
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DOI:
10.1007/s00520-010-1031-6
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发表时间:
2011-12
影响因子:
3.1
通讯作者:
Suarez-Almazor, Maria E.
Suarez-Almazor, Maria E.
中科院分区:
医学2区
文献类型:
--
作者:
Roundtree, Aimee Kendall;Giordano, Sharon H.;Price, Andrea;Suarez-Almazor, Maria E.

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我们进行了一项定性研究,以探索乳腺癌的存活率,并参加他们当前的医疗保健利用,筛查和信息需求。 我们完成了八个乳腺癌的焦点,我们包括了妇女,成年人的生存,并在2000年对乳腺癌进行了诊断,并且根据病历而没有复发。其中出乎意料的主题和直接答案来自共同编码之间的共识。 焦点小组包括33名参与者,其中大多数是白人(84.8%),受过大学教育(66.7%),并由私人医疗保险(75.7%)或Medicare(27.3%)涵盖。根据个人经验(包括面对筛查的障碍,在医疗保健系统中陷入困境,与医生之间的沟通问题,症状混乱以及使用时,自我规定的补救措施),个人与会者(包括关于生存的意义,对复发的担忧以及自我认知和代理的变化的强烈看法)以及社会影响(包括建模他人的行为,社交生活的变化以及倾听家人的倾听)。 除了自我效能之外随着时间的流逝,幸存者从提供商转向提供者。态度和行为,并利用社会影响。
We conducted a qualitative study to explore breast cancer survivors’ perceptions and attitudes about their current healthcare utilization, screening, and information needs. We completed eight focus groups of breast cancer survivors. We included women, adult survivors, with an initial diagnosis of breast cancer in the year 2000, treated, and without a recurrence as per medical record. To analyze transcripts, we used grounded theory methods, wherein unexpected themes and direct answers emerged from consensus between co-coders. Focus groups included 33 participants, the majority of whom were white (84.8%), college-educated (66.7%), and covered by private medical insurance (75.7%) or Medicare (27.3%). Participants’ perceptions and attitudes about care were framed in terms of personal experiences (including facing barriers to screening, feeling in limbo in the healthcare system, having problems with communication with and between physicians, confusion about symptoms, and using self-prescribe remedies), personal attitudes (including strong opinions about what survivorship means, concerns about recurrence, and changes in self-perception and agency), and social influences (including modeling others’ behaviors, changes in social life, and listening to family). Survivorship attitudes, recurrence fears, memories, and self-perceptions were influential personal factors in addition to self-efficacy. Solutions such as providing a cancer treatment summary might resolve many of the problems by consolidating and making readily available the numerous medical history and recommendations that survivors accrue over time, switching from provider to provider. Clinicians must also implement communication changes in their interactions with patients to enhance positive attitudes and behaviors, and leverage social influences.
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