Evaluation of emergency department-based seizure and epilepsy education: Exploring the need for early epilepsy self-management intervention.
Evaluation of emergency department-based seizure and epilepsy education: Exploring the need for early epilepsy self-management intervention.
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DOI：
10.1016/j.yebeh.2020.107702
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发表时间：
2021-03
期刊：
影响因子：
--
通讯作者：
Eads P
中科院分区：
文献类型：
--
作者：
Miller WR;Wion RK;Eads P
许多癫痫(PWE)患者在首次癫痫发作时出现在急诊科，必须等待数周或数月才能得到专门的癫痫提供者的诊断。从首次发作到进入专科治疗之间的这段时间对PWE及其家人来说可能是极其紧张和危险的。为了达到最佳效果，应尽快启动癫痫自我管理，包括在急诊科设置中。这项研究的目的是回顾和评估现有提供给急诊室患者的癫痫/癫痫相关教育材料，以确定这些材料在多大程度上帮助患者及其家人在急诊室出院到进入专门护理之间的期间为癫痫或潜在癫痫的自我管理做好准备。收集20份急诊科癫痫/癫痫患者出院教育资料，以癫痫自我管理量表(AESMMI)为框架进行评价。根据包括自我管理教育、资源和技能培养的程度，材料被评为0-3分。被审查的材料的平均分数相当低，只有10.4分，可能的分数是33分。同样令人担忧的是，在社会支持、压力管理和应对方面得分最低的材料，这些领域对PWE来说都是非常重要的领域，特别是在疾病的早期阶段，患者和家人正在适应。研究结果突出表明，在从首次发作到进入专科护理的过渡时期，有必要制定针对预激综合征的强有力的自我管理干预措施。
Many people with epilepsy (PWE) present to the emergency department setting with their first seizure and must wait weeks or months to be seen by a specialized epilepsy provider. The time period between presentation of first seizure and entry into specialized care can be extremely stressful and precarious for PWE and their families. In order to achieve optimal outcomes, epilepsy self-management should be initiated as soon as possible, including in the emergency department setting. The purpose of this study was to review and evaluate existing epilepsy/seizure-related education materials provided to patients in the emergency room setting to determine the degree to which these materials prepare patients and their families for self-management of epilepsy, or potential epilepsy, during the interim between emergency department discharge and entry into specialized care. Twenty emergency department epilepsy/seizure patient discharge education materials were collected and evaluated using a rubric based on the framework of the Epilepsy Self-Management Scale (AESMMI). Materials were rated on a 0–3 scale based on the degree to which self-management education, resources, and skill building were included. The mean score of materials reviewed was quite low at just 10.4, with a score of 33 possible. Also concerning is that the materials scored lowest in the domains of social support, stress management, and coping, all of which are extremely important areas for PWE, especially in the early phases of the disease when patients and families are adjusting. Findings highlight the need for development of robust self-management interventions tailored to PWE in the transition period from presentation of first seizure to entry to specialized care.
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影响因子：
2.6
作者：
Unger, Wendy R.;Buelow, Janice M.
通讯作者：
Buelow, Janice M.
DOI：
10.1016/j.yebeh.2016.11.015
发表时间：
2017-03
期刊：
Epilepsy & behavior : E&B
影响因子：
--
作者：
Helmers SL;Kobau R;Sajatovic M;Jobst BC;Privitera M;Devinsky O;Labiner D;Escoffery C;Begley CE;Shegog R;Pandey D;Fraser RT;Johnson EK;Thompson NJ;Horvath KJ;Centers for Disease Control and Prevention Managing Epilepsy Well Network
通讯作者：
Centers for Disease Control and Prevention Managing Epilepsy Well Network
影响因子：
2.6
作者：
Dilorio, Colleen;Bamps, Yvan;Escoffery, Cam
通讯作者：
Escoffery, Cam
影响因子：
2.6
作者：
Escoffery, Cam;Bamps, Yvan;Hatfield, Katherine
通讯作者：
Hatfield, Katherine
影响因子：
2.6
作者：
Pandey, Dilip K.;Dasgupta, Raktima;Loeb, Jeffrey A.
通讯作者：
Loeb, Jeffrey A.