"I can't be what I want to be": children's narratives of chronic pain experiences and treatment outcomes.
"I can't be what I want to be": children's narratives of chronic pain experiences and treatment outcomes.
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DOI：
10.1111/j.1526-4637.2009.00650.x
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发表时间：
2009-09
期刊：
影响因子：
--
通讯作者：
Zeltzer LK
中科院分区：
文献类型：
--
作者：
Meldrum ML;Tsao JC;Zeltzer LK
慢性或复发性非恶性疼痛是许多儿童和青少年的一个重要问题，通常限制了儿童参与正常的身体，学术和社会活动。为了更好地了解慢性或复发性疼痛对儿童的影响，在他们自己的生活和经验的背景下，使用定性分析，并建议临床实践中的叙事方法的应用。在基线和门诊就诊后6-12个月进行的深入半结构化访谈的扎根理论和叙述分析。目标住宅53名10-17岁的儿童因复发性疼痛前往大学疼痛诊所就诊。在研究期间，该样本与总体临床人群无显著差异。确定了五个共同的主题，这表明，孤立，改变自我认知，活动限制和对未来目标的障碍的关注，以及缺乏医疗验证是重要的儿童的感知影响疼痛对他们的生活。确定了五种叙述，每种叙述都对基线时特定儿童子集提出的因素和观点进行了连贯、综合的描述。然后将这些叙述与儿童在6-12个月时疼痛和功能改善的报告进行比较;从这种比较中，一些儿童出现了第六种治疗变化的叙述。作者建议，医生和父母主动引出孩子的叙述可以帮助孩子重写故事，以促进治疗变化，更好的结果和更高的满意度。
Chronic or recurrent non-malignant pain is a significant problem for many children and adolescents and often limits the child's participation in normal physical, academic, and social activities. To better understand the impact of chronic or recurrent pain on children within the context of their own lives and experiences, using qualitative analysis, and to suggest the applications of the narrative method to clinical practice. Grounded theory and narrative analysis of in-depth semi-structured interviews conducted at baseline and 6-12 months following clinic intake. Subject homes. 53 children ages 10-17 presenting with recurrent pain to a university-based pain clinic. This sample did not differ significantly from the overall clinic population during the study period. Five common themes were identified; these suggested that isolation, changed self-perception, activity limitations and concerns about barriers to future goals, and lack of medical validation were important to the children's perceived impact of pain on their lives. Five narratives were identified, each of which provided a coherent, integrated description of the factors and perspectives presented by a specific subset of children at baseline. These narratives were then compared against the children's reports of improvement in pain and functioning at 6-12 months; from this comparison, a sixth narrative of therapeutic change emerged for some of the children. The authors suggest that physicians and parents who take the initiative to elicit the child's narrative can help the child to rewrite the story to promote therapeutic change, a better outcome, and higher satisfaction.
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影响因子：
3.6
作者：
Bandell-Hoekstra, IENG;Abu-Saad, HH;Knipschild, P
通讯作者：
Knipschild, P
DOI：
10.1177/1367493504045822
发表时间：
2004-09-01
期刊：
Journal of child health care : for professionals working with children in the hospital and community
影响因子：
--
作者：
Kortesluoma, Riitta-Liisa;Nikkonen, Merja
通讯作者：
Nikkonen, Merja
影响因子：
3.6
作者：
Hunfeld, JAM;Perquin, CW;van der Wouden, JC
通讯作者：
van der Wouden, JC
影响因子：
4.7
作者：
Barkwell, D
通讯作者：
Barkwell, D
影响因子：
7.4
作者：
Bursch, Brenda;Tsao, Jennie C. I.;Zeltzer, Lonnie K.
通讯作者：
Zeltzer, Lonnie K.