Top 10 (plus 1) research priorities for expectant families and those with children to age 24 months in Alberta, Canada: results from the Family Research Agenda Initiative Setting (FRAISE) priority setting partnership project.
Top 10 (plus 1) research priorities for expectant families and those with children to age 24 months in Alberta, Canada: results from the Family Research Agenda Initiative Setting (FRAISE) priority setting partnership project.
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DOI：
10.1136/bmjopen-2020-047919
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发表时间：
2021-12-09
期刊：
影响因子：
2.9
通讯作者：
Benzies K
中科院分区：
文献类型：
--
作者：
Brockway ML;Keys E;Bright KS;Ginn C;Conlon L;Doane S;Wilson J;Tomfohr-Madsen L;Benzies K
该研究的目的是确定24个月以下儿童的准父母和照顾者的十大首要研究重点。
采用改良的詹姆斯·林德联盟方法实施了一项确定重点的合作项目。首先，成立了一个核心指导委员会，由17名家长、临床医生和社区机构代表组成。其次，通过与指导委员会成员面对面合作，我们制定并发放了一份调查问卷，以确定12个主题的研究重点。共有596名参与者同意参与，480人完成了调查。在与指导委员会成员（n = 18）举行的建立共识研讨会上，调查问卷的回答被分组并归纳为不同的主题代码。咨询了研究和实践专家，就哪些主题已经被研究提供反馈。通过一次面对面（n = 21）的研讨会确定了前34个重点，这些重点通过在线调查分发给更广泛的指导委员会（n = 25）。最后，核心指导委员会成员（n = 18）开会确定并对十大（加一个）研究重点进行排名。
这项研究在加拿大艾伯塔省进行。
研究对象为24个月以下儿童的准父母和照顾者。
调查结果提供了3232条回复，包含202个独特的重点。在专家反馈和指导委员会达成共识后，34个重点被提出供最终审议。最终的十大（加一）研究重点包括三个关于心理健康/人际关系的重点，两个关于获取信息、免疫和儿童发育的重点，以及一个关于睡眠、怀孕/分娩和喂养的重点。选择11个而不是10个重点是基于指导委员会的共识。
这些研究结果将指导未来的母婴研究，确保其基于父母确定的代表当代需求的重点。为了提供有意义的结果，这些重点领域的研究必须考虑不同的社会经济背景和经历。
The study objective was to identify the top 10 research priorities for expectant parents and caregivers of children up to age 24 months. A priority setting partnership using a modified James Lind Alliance approach was implemented. First, a core steering committee was formed, consisting of 17 parents, clinicians and community agency representatives. Second, through in-person collaboration with steering committee members, we developed and distributed a survey to identify research priorities across 12 topics. In total, 596 participants consented and 480 completed the survey. Survey responses were grouped and themed into codes during a consensus-building workshop with steering committee members (n=18). Research and practice experts were consulted to provide feedback on which themes had already been researched. An in-person (n=21) workshop was used to establish the top 34 priorities, which were circulated to the broader steering committee (n=25) via an online survey. Finally, the core steering committee members (n=18) met to determine and rank a top 10 (plus 1) list of research priorities. This study was conducted in Alberta, Canada. Expectant parents and caregivers of children up to age 24 months. Survey results provided 3232 responses, with 202 unique priorities. After expert feedback and steering committee consensus, a list of 34 priorities was moved forward for final consideration. The final top 10 (plus 1) research priorities included three priorities on mental health/relationships, two priorities on each of access to information, immunity and child development, and one priority on each of sleep, pregnancy/labour and feeding. Selecting 11 instead of 10 priorities was based on steering committee consensus. The findings will direct future maternal–child research, ensuring it is rooted in parent-identified priorities that represent contemporary needs. To provide meaningful outcomes, research in these priority areas must consider diverse socioeconomic backgrounds and experiences.
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DOI：
10.9778/cmajo.20180034
发表时间：
2018-07-01
期刊：
CMAJ open
影响因子：
--
作者：
Breault, Lorraine J;Rittenbach, Katherine;Mason-Lai, Ping
通讯作者：
Mason-Lai, Ping
影响因子：
2.8
作者：
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通讯作者：
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影响因子：
2.9
作者：
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通讯作者：
Cowan, Katherine
影响因子：
2
作者：
Pehora C;Gajaria N;Stoute M;Fracassa S;Serebale-O'Sullivan R;Matava CT
通讯作者：
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影响因子：
3.8
作者：
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Worth, A