Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.

Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.
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DOI:
10.1177/01939459221142164
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发表时间:
2023-05
影响因子:
1.8
通讯作者:
Hickman, Ronald L.
Hickman, Ronald L.
中科院分区:
医学4区
文献类型:
--
作者:
Jenerette, Coretta;O'Brien, Julia;Jaja, Cheedy;Carvalho, Evanilda Souza de Santana;Brewer, Cheryl;Hickman, Ronald L.

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Health-related stigma, a form of devaluation related to a health condition, is common in individuals with sickle cell disease (SCD). Pain is the hallmark symptom of SCD, and health-related stigma is often described during care-seeking for pain management. Few published instruments measure health-related stigma in individuals with SCD. This study builds on the psychometrics of 30 and 40-item Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). In a sample of 197 adults with SCD, the results support the reliability and validity of a 21-item scale, the SCD-HRSS Short Form, with an overall Cronbach’s alpha reliability of 0.91 and discriminant validity with the PROMIS 29 subscales (anxiety, depressive symptoms, pain interference, physical fatigue, sleep, and role satisfaction). A shorter yet reliable and valid scale may decrease the burden for this underrepresented, minoritized population while still providing important information regarding their experiences of stigmatization.
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