Parental hopeful patterns of thinking, emotions, and pediatric palliative care decision making: a prospective cohort study.

Parental hopeful patterns of thinking, emotions, and pediatric palliative care decision making: a prospective cohort study.
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DOI:
10.1001/archpediatrics.2010.146
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发表时间:
2010-09
影响因子:
--
通讯作者:
Kazak, Anne E.
Kazak, Anne E.
中科院分区:
其他
文献类型:
--
作者:
Feudtner, Chris;Carroll, Karen W.;Hexem, Kari R.;Silberman, Jordan;Kang, Tammy I.;Kazak, Anne E.

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Test the hypothesis that hopeful patterns of thoughts and emotions of parents of pediatric patients receiving palliative care consultative services are related to subsequent decisions, specifically regarding limit of intervention (LOI) orders. Prospective cohort study. Children's hospital and surrounding region. 33 pediatric patients receiving palliative care consult services who did not have LOI orders at time of cohort entry and their 43 parental adults. Parental levels at time of cohort entry of hopeful patterns of thinking and emotions, in conjunction with perceptions about patients' health trajectories Enactment of an LOI order after entry into the cohort. During the 6 months of observation, 14 patients had (42.4%) an LOI order enacted. In adjusted analyses, higher levels of parental hopeful patterns of thinking were significantly associated with increased odds of enactment of an LOI order [AOR 2.73; 95% CI: 1.04, 7.22]. Increased odds of LOI enactment were associated to non-significant degrees with lower levels of parental positive affect [AOR 0.44; 95% CI: 0.17, 1.12], higher levels of parental negative affect [AOR 2.02; 95% CI: 0.98, 4.16], and parental perceptions of worsening health over time [AOR 1.72; 95% CI: 0.73, 4.07]. For pediatric patients receiving palliative care consultative services, higher levels of parents' hopeful patterns of thinking are associated with subsequent enactment of LOI orders, suggesting that emotional and cognitive processes have a combined effect on medical decisionmaking.
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