Transition from pediatric to adult care for sickle cell disease: results of a survey of pediatric providers.
Transition from pediatric to adult care for sickle cell disease: results of a survey of pediatric providers.
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DOI：
10.1002/ajh.22016
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发表时间：
2011-06
影响因子：
12.8
通讯作者：
Heeney MM
中科院分区：
文献类型：
--
作者：
Sobota A;Neufeld EJ;Sprinz P;Heeney MM
就在 20 世纪 70 年代，出生时患有镰状细胞病 (SCD) 的儿童不太可能活到成年。随着医疗保健的进步，大多数患者现在都能度过童年并活到四十多岁或更长。因此，从以儿科为重点的护理到以成人为重点的护理的更好过渡变得越来越重要。尽管 SCD 社区最近意识到过渡的重要性，但对现有过渡计划知之甚少。我们对儿科镰状细胞诊所进行了一项调查，以描述当前的过渡实践并确定需要改进的领域。调查主题包括项目人口统计、过渡后勤、患者过渡准备情况和独立性评估、过渡准备和项目评估。 23 家诊所 (77%) 报告称已制定过渡计划，但其中一半的实施时间还不到 2 年。具体的过渡实践存在很大差异。大多数中心 (97%) 都有指定的成人医疗服务提供者，但是，只有 60% 的中心定期将患者转移给专门从事 SCD 的成人血液科医生。尽管最近努力在儿科镰状细胞诊所建立过渡计划，但具体做法差异很大。正如预期的那样，缺乏对 SCD 感兴趣的可接受的成年血液学家成为过渡的常见障碍。
As recently as the 1970s, children born with sickle cell disease (SCD) were unlikely to survive into adulthood. With advances in medical care, most patients now survive childhood and live into their forties or beyond. A better transition from pediatric- to adult-focused care is therefore increasingly important. Despite recent awareness of the importance of transition by the SCD community, little is known about existing transition programs. We conducted a survey of pediatric sickle cell clinics to describe current transition practices and identify areas for improvement. Survey topics included program demographics, transition logistics, assessment of patient transition readiness and independence, transition preparation, and program evaluation. Twenty-three clinics (77%) report having a transition program, although half have been in place for under 2 years. There is wide variation in specific transition practices. Most centers (97%) have an identified accepting adult provider, however, only 60% routinely transfer their patients to an adult hematologist specializing in SCD. Although there has been a recent effort to establish transition programs in pediatric sickle cell clinics, specific practices vary widely. As anticipated, lack of an accepting adult hematologist with an interest in SCD emerged as a common barrier to transition.
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影响因子：
2.2
作者：
Brumfield, K;Lansbury, G
通讯作者：
Lansbury, G
影响因子：
158.5
作者：
PLATT, OS;BRAMBILLA, DJ;KLUG, PP
通讯作者：
KLUG, PP
影响因子：
3.2
作者：
McPherson, Marianne;Thaniel, Lisa;Minniti, Caterina P.
通讯作者：
Minniti, Caterina P.
影响因子：
12.8
作者：
Kauf, Teresa L.;Coates, Thomas D.;Hartzema, Abraham G.
通讯作者：
Hartzema, Abraham G.
DOI：
10.1053/jpdn.2002.30930
发表时间：
2002-02-01
期刊：
Journal of pediatric nursing
影响因子：
--
作者：
Wojciechowski, Elizabeth A;Hurtig, Anita;Dorn, Louise
通讯作者：
Dorn, Louise