Interventions to address disparities and barriers to pediatric cancer survivorship care: a scoping review.
Interventions to address disparities and barriers to pediatric cancer survivorship care: a scoping review.
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DOI：
10.1007/s11764-021-01060-4
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发表时间：
2022-06
期刊：
影响因子：
--
通讯作者：
Hempel S
中科院分区：
文献类型：
--
作者：
Mobley EM;Moke DJ;Milam J;Ochoa CY;Stal J;Osazuwa N;Kemp J;Bolshakova M;Dinalo J;Motala A;Hempel S
许多儿童癌症幸存者由于建议的生存护理的障碍而经历差异。为了证明以证据为基础的方法来减轻障碍和减少差异，我们对（1）提出的策略和（2）评估改善儿童癌症生存护理的干预措施进行了范围审查。我们检索了研究数据库（PubMed、CINAHL和PsycINFO）、研究登记和灰色文献（专业组织和指南交换所的网站），以获得截至2020年10月的指南和已发表的研究（范围审查注册：https：//doi.org/10.17605/OSF.IO/D8Q7Y）。我们确定了16项建议策略，以解决专业组织认可的差异和障碍，包括临床实践指南（N=9），政策声明（N=4）和建议（N=3）。27项已发表的研究评估了缓解生存护理差异或障碍的干预措施;然而，这些评估的干预措施与专业组织认可的拟议战略并不一致。最常见的是，干预措施评估生存护理计划（N=11）或护理模式（N=11），然后是个人生存护理服务（N=9）。干预措施主要针对患者，而不是提供者或系统，并使用技术，教育，共享护理，协作和基于位置的干预措施。已发表的旨在克服儿童癌症幸存者生存护理的差异和障碍的研究表明，已发表的建议与旨在减少障碍和差异的干预措施的经验性评估之间仍然存在差距。需要进行更多的研究，以确定基于证据的干预措施，以改善儿童癌症幸存者的生存护理。
Many childhood cancer survivors experience disparities due to barriers to recommended survivorship care. With an aim to demonstrate evidence-based approaches to alleviate barriers and decrease disparities, we conducted a scoping review of (1) proposed strategies and (2) evaluated interventions for improving pediatric cancer survivorship care. We searched research databases (PubMed, CINAHL, and PsycINFO), research registries, and grey literature (websites of professional organizations and guideline clearing houses) for guidelines and published studies available through October 2020 (scoping review registration: https://doi.org/10.17605/OSF.IO/D8Q7Y). We identified 16 proposed strategies to address disparities and barriers endorsed by professional organizations including clinical practice guidelines (N=9), policy statements (N=4), and recommendations (N=3). Twenty-seven published studies evaluated an intervention to alleviate disparities or barriers to survivorship care; however, these evaluated interventions were not well aligned with the proposed strategies endorsed by professional organizations. Most commonly, interventions evaluated survivorship care plans (N=11) or models of care (N=11) followed by individual survivorship care services (N=9). Interventions predominantly targeted patients rather than providers or systems and used technology, education, shared care, collaboration, and location-based interventions. Published studies aimed at overcoming disparities and barriers to survivorship care for childhood cancer survivors revealed that gaps remain between published recommendations and empirical evaluations of interventions aiming to reduce barriers and disparities. Additional research is needed to identify evidence-based interventions to improve survivorship care for childhood cancer survivors.
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影响因子：
8
作者：
American Academy of Pediatrics Section on Hematology/Oncology Children's Oncology Group
通讯作者：
American Academy of Pediatrics Section on Hematology/Oncology Children's Oncology Group
影响因子：
2.2
作者：
Chow, Eric J.;Baldwin, Laura-Mae;Oeffinger, Kevin C.
通讯作者：
Oeffinger, Kevin C.
影响因子：
1.6
作者：
Casillas, Jacqueline N.;Schwartz, Lindsay F.;Gildner, Jennifer L.;Crespi, Catherine M.;Ganz, Patricia A.;Kahn, Katherine L.;Stuber, Margaret L.;Bastani, Roshan;Morales, Sonia;Quintana, Karla;Gonzalez, Amri;Casas, Esther;Barboa, Elvia
通讯作者：
Barboa, Elvia
影响因子：
3.8
作者：
de Moor, Janet S.;Puleo, Elaine;Emmons, Karen M.
通讯作者：
Emmons, Karen M.
影响因子：
1.7
作者：
Bashore, Lisa;Bender, Joyce
通讯作者：
Bender, Joyce