Engaging Latino Adolescent and Young Adult (AYA) Cancer Survivors in Their Care: Piloting a Photonovela Intervention.

Engaging Latino Adolescent and Young Adult (AYA) Cancer Survivors in Their Care: Piloting a Photonovela Intervention.
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DOI:
10.1007/s13187-020-01724-2
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发表时间:
2021-10
影响因子:
1.6
通讯作者:
Barboa, Elvia
Barboa, Elvia
中科院分区:
医学4区
文献类型:
--
作者:
Casillas, Jacqueline N.;Schwartz, Lindsay F.;Gildner, Jennifer L.;Crespi, Catherine M.;Ganz, Patricia A.;Kahn, Katherine L.;Stuber, Margaret L.;Bastani, Roshan;Morales, Sonia;Quintana, Karla;Gonzalez, Amri;Casas, Esther;Barboa, Elvia

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鉴于美国不断变化的人口结构,拉美裔青少年和年轻成人(Aya)癌症幸存者代表着不断增长的人口。他们经历着严重的卫生保健差距和障碍,需要针对特定年龄和文化的适当干预措施,以改善他们的临床和心理社会结果。这项单臂试点研究评估了一种新的干预措施--Photoonovela--关于其教育拉丁裔Aya幸存者及其家庭成员并让他们参与生存护理的能力。这项研究招募了97名参与者(拉丁裔Aya幸存者及其家人)。在接受Photoonovela之前、干预后和增强电话会议上,对家庭进行了三项评估生存护理信心、癌症耻辱和生存护理知识的调查。使用混合效应模型评估三个时间点的得分差异,同时考虑重复测量和家庭聚集性。结果表明,Photoonovela在改善拉丁裔Aya幸存者及其家人的生存关怀、信心和知识方面是有效的。这项初步研究表明,Phoonovela有可能成为一种有用的干预措施,以提高对需要为拉丁裔Aya癌症幸存者寻求生存护理的信心和知识。
Latino adolescent and young adult (AYA) cancer survivors represent a growing population given the changing demographics in the United States. They experience significant health care disparities and barriers that warrant age-specific and culturally appropriate interventions to improve their clinical and psychosocial outcomes. This single-arm pilot study evaluated a novel intervention – a photonovela – on its ability to educate Latino AYA survivors and their family members and engage them in survivorship care. Ninety-seven participants (Latino AYA survivors and their family members) were recruited for this study. Three surveys assessing survivorship care confidence, cancer stigma, and survivorship care knowledge were administered to families before they received the photonovela, after the intervention, and at a booster phone call session. Mixed effects models were used to evaluate differences in scores at the three time points while accounting for repeated measures and family clustering. Results show the photonovela was effective in improving survivorship care confidence and knowledge of Latino AYA survivors and their families. This pilot study indicates the photonovela has potential to be a useful intervention for improving confidence and knowledge regarding the need to seek survivorship care for Latino AYA cancer survivors.
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