Pain in youths with neuromuscular disease.

Pain in youths with neuromuscular disease.
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DOI:
10.1177/1049909109346165
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发表时间:
2009-10
期刊:
The American journal of hospice & palliative care
影响因子:
--
通讯作者:
Jaffe KM
Jaffe KM
中科院分区:
其他
文献类型:
--
作者:
Engel JM;Kartin D;Carter GT;Jensen MP;Jaffe KM

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为了研究神经肌肉疾病(NMD)儿童疼痛的患病率和特征,对42名NMD青少年进行了全面评估,包括详细的访谈和结构化问卷,其中包括人口统计学和功能数据。报告慢性疼痛的青少年进一步询问疼痛的特点,位置和强度使用11点数字评分量表和修改后的简明疼痛量表(BPI)。样本包括24名男性(57%)和18名女性(43%),年龄范围为9 - 20岁(M = 14.8,SD = 2.96)。参与者包括14例(37%)Duchenne型肌营养不良,6例(14%)强直性肌营养不良,2例(5%)Becker型肌营养不良,2例(5%)肢带型肌营养不良,2例(5%)先天性肌营养不良,1例(2%)面肩肱型肌营养不良,15例(36%)被归类为“其他NMD”。21例(50%)为非卧床患者; 26例(62%)使用电动轮椅/踏板车,9例(2%)使用手动轮椅,3例(0.07%)使用拐杖/手杖,1例(2%)使用步行者。共有23名(55%)年轻人报告患有慢性疼痛。当前疼痛强度为1.30(范围=0-6),过去一周的平均疼痛强度为2.39(范围= 0-7),平均疼痛持续时间为8.75小时(SD=12.84)。腿部疼痛是最常报告的,83%的患者报告使用止痛药。这项研究表明,慢性疼痛是一个显着的问题,在青年NMD。这些数据强烈支持将全面的疼痛评估和管理作为NMD青少年护理标准的组成部分。
To examine the prevalence and characteristics of pain in children with neuromuscular disease (NMD), 42 youths with NMD underwent a comprehensive evaluation including a detailed intake interview and structured questionnaire that included demographic and functional data. Youths who reported chronic pain were further queried about pain characteristics, locations, and intensity using an 11-point numerical rating scale and a modified Brief Pain Inventory (BPI). The sample consisted of 24 males (57%) and 18 females (43%), ages ranging from 9 to 20 years (M = 14.8, SD = 2.96). Participants included 14 (37%) with Duchenne-muscular dystrophy, 6 (14%) with myotonic dystrophy, 2 (5%) with Becker dystrophy, 2 (5%) with limb-girdle dystrophy, 2 (5%) with congenital muscular dystrophy, 1 (2%) facioscapulohumeral, and 15 (36%) were classified as “other NMD.” Twenty-one (50%) were ambulatory; 26 (62%) used power wheelchairs/scooters, 9 (2%) used manual wheelchairs, 3 (.07%) used crutches/canes, and 1 (2%) used a walker. A total of 23 (55%) of the youths reported having chronic pain. Current pain intensity was 1.30(range=0–6), mean pain intensity over the past week was 2.39 (range = 0–7), mean pain duration was 8.75 hours (SD=12.84). Pain in the legs was most commonly reported and 83% reported using pain medications. This study indicates that chronic pain is a significant problem in youths with NMD. These data strongly support making comprehensive pain assessment and management an integral part of the standard of care for youths with NMD.
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