Can routine data be used to estimate the mental health service use of children and young people living on Gypsy and Traveller sites in Wales? A feasibility study.

Can routine data be used to estimate the mental health service use of children and young people living on Gypsy and Traveller sites in Wales? A feasibility study.
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DOI:
10.1371/journal.pone.0281504
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发表时间:
2023
期刊:
影响因子:
3.7
通讯作者:
--
中科院分区:
综合性期刊3区
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吉普赛人和游民的身心健康状况比一般人口差,但对吉普赛人和游民儿童和青年使用心理健康服务的情况知之甚少。由于种族记录有限,在常规电子健康数据中找到这一群体具有挑战性。我们评估了使用地理标记与相关常规数据集相结合来估计生活在旅行者网站上的儿童和年轻人使用心理健康服务的可行性。威尔士政府提供了一份2012年至2020年期间包含在大篷车数量中的旅行者网站邮政编码列表。使用来自斯旺西大学SAIL数据库青少年心理健康数据平台(ADP)的数据进行空间过滤,我们创建了一个年龄在11-25岁之间的旅行者网站居民队列,2010-2019。ADP算法被用来描述卫生服务的使用,并估计常见精神障碍(CMD)和自我伤害的发病率和患病率。我们的研究发现了一个年轻的吉普赛人和旅行者亚组(n = 802)。我们发现,我们的队列和一般人群之间的CMD或自我伤害率没有显着差异。在我们的队列中,精神科门诊随访预约的缺席率显著较高。吉普赛人和游民的比率较高(但没有统计学意义),因为这些措施表明管理不善的护理,包括急诊室就诊和没有随访的CMD处方药。与一般人群相比,队列的规模较小导致估计不精确,置信区间较宽。吉普赛人和流浪者在常规健康数据集中的代表性不足,即使使用地理标记,也只能找到那些居住在授权的流浪者地点的人。需求评估和服务规划越来越依赖常规数据,这对这一得不到充分服务的群体具有政策和实践影响。为了解决健康不平等问题,需要努力确保健康数据集准确地反映种族情况。
Gypsies and Travellers have poorer physical and mental health than the general population, but little is known about mental health service use by Gypsy and Traveller children and young people. Finding this group in routine electronic health data is challenging, due to limited recording of ethnicity. We assessed the feasibility of using geographical markers combined with linked routine datasets to estimate the mental health service use of children and young people living on Traveller sites. Welsh Government supplied a list of Traveller site postcodes included in Caravan Counts between 2012 and 2020. Using spatial filtering with data from the Adolescent Mental Health Data Platform (ADP) at Swansea University’s SAIL Databank, we created a cohort of Traveller site residents aged 11–25 years old, 2010–2019. ADP algorithms were used to describe health service use, and to estimate incidence and prevalence of common mental disorders (CMD) and self-harm. Our study found a subgroup of young Gypsies and Travellers (n = 802). We found no significant differences between our cohort and the general population for rates of CMD or self-harm. The rate of non-attendance for psychiatric outpatient follow-up appointments was significantly higher in our cohort. Rates were higher (but not statistically significant) among Gypsies and Travellers for measures suggesting less well-managed care, including emergency department attendance and prescribed CMD medication without follow-up. The small size of the cohort resulted in imprecise estimates with wide confidence intervals, compared with those for the general population. Gypsies and Travellers are under-represented in routine health datasets, even using geographical markers, which find only those resident in authorised traveller sites. Routine data is increasingly relied upon for needs assessment and service planning, which has policy and practice implications for this underserved group. To address health inequalities effort is required to ensure that health datasets accurately capture ethnicity.
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