An exploratory study of social problems experienced by ambulatory cancer patients in Japan: Frequency and association with perceived need for help
An exploratory study of social problems experienced by ambulatory cancer patients in Japan: Frequency and association with perceived need for help
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日本门诊癌症患者经历的社会问题的探索性研究：频率及其与感知需要帮助的关联
DOI：
10.1002/pon.4703
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发表时间：
2018
期刊：
影响因子：
3.6
通讯作者：
Motoo Yoshiharu
中科院分区：
文献类型：
--
作者：
Hisamura Kazuho;Matsushima Eisuke;Tsukayama Syouichi;Murakami Shinya;Motoo Yoshiharu
目的对非西方国家癌症患者所经历的社会问题知之甚少。本研究的目的是(1)探讨癌症门诊患者社会问题的特点和频率，及其与需要帮助的关系；(2)初步开发日本癌症相关社会问题的评估工具。方法横断面调查109名癌症患者，完成社会问题量表和欧洲癌症研究与治疗组织生活质量问卷C30。参与者对问题的严重程度和对每个项目的帮助需求进行了评级。结果72.5%的被试遇到了≥-1问题，33%的被试经历了≥-1严重问题。需要帮助的数量往往低于问题的严重性，特别是在家庭和社会生活问题上。据约40%经历过问题的患者报告，最常见的不需要帮助的原因是对自我管理的偏好。提取了一个包括财务、医疗信息、家庭和社会生活的三因素模型。欧洲癌症研究与治疗组织生活质量问卷C30相关分量表与社会问题量表之间具有较好的内部一致性，且相关系数较高。结论相当比例的受试者存在癌症相关的社会问题，但存在矛盾的帮助相关需求。在日本，提高患者自我护理能力的干预措施可能对帮助癌症门诊患者处理社会问题至关重要。
ObjectiveLittle is known about the social problems experienced by cancer patients in non‐Western countries. The aims of this study were (1) to explore the characteristics and frequencies of social problems in cancer outpatients, as well as their associations with the need for help, and (2) to take the initial steps to develop an instrument for the assessment of cancer‐related social problems in Japan.MethodsA cross‐sectional group of 109 patients completed the Social Problem Checklist and European Organization for Research and Treatment of Cancer Quality of Life Questionnaire C30. Participants rated the levels of the problem severity and the need for help on each item. Factor structure, internal consistency, and construct validity were also assessed.ResultsIn total, 72.5% of the participants encountered ≥1 problem, and 33% experienced ≥1 serious problem. The amount of help needed tended to be lower than problem severity, especially for family and social life issues. The most common reason for not needing help, as reported by approximately 40% of patients who experienced problems, was the preference for self‐management. A 3‐factor model was extracted that included financial matters, medical information, and family and social life. Excellent internal consistencies for each factor and convergent correlations between the relevant subscales of European Organization for Research and Treatment of Cancer Quality of Life Questionnaire C30 and Social Problem Checklist were confirmed.ConclusionsA substantial proportion of participants had cancer‐related social problems, but they had ambivalent help‐related needs. Interventions that enhance the patient's abilities for self‐care could be essential to help cancer outpatients manage social problems in Japan.
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DOI：
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发表时间：
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期刊：
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