Genetics workforce: distribution of genetics services and challenges to health care in California.
Genetics workforce: distribution of genetics services and challenges to health care in California.
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遗传学劳动力：遗传学服务的分布和加利福尼亚州医疗保健的挑战。
DOI：
10.1038/s41436-019-0628-5
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发表时间：
2020-01
期刊：
影响因子：
--
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中科院分区：
文献类型：
--
作者：
获得遗传学医疗服务往往因距离医院、劳动力短缺和保险范围而变得复杂。尽管技术进步和基因测序成本下降，但许多患者可能无法获得个性化医疗的好处。为了评估护理中的潜在差异，我们研究了加州的遗传学工作人员和人们在寻求护理时遇到的地理问题。对所有委员会认证的遗传学提供者的数据进行了分析，包括加州的医学遗传学家（MG）和遗传咨询师（GC）。为了评估护理的距离，我们计算了患者前往UCSF医学遗传学的n=288次访问的距离。我们进行了地理优化，以尽量减少与遗传学提供者的距离。加州的提供者与患者比例为1：330，000 MG，1：100，000 GC和1：1，520，000生化MG。遗传学提供者集中在加州的主要大都市地区。人们在该州内旅行386英里进行遗传学护理（平均= 76.6英里）。遗传学护理存在巨大的地理障碍，可能会增加差异。我们的研究结果突出了遗传学劳动力短缺的挑战。由于护理次级专业化或缺乏全职同等人员和工作人员，短缺可能更大。我们目前正在努力增加远程医疗选择、培训和改进的护理模式。
Access to genetics healthcare services is often complicated by the distance to hospitals, workforce shortages, and insurance coverage. Despite technological advances and decreasing costs of genetic sequencing, the benefits of personalized medicine may be inaccessible to many patients. To assess potential disparities in care, we examined the genetics workforce in California and geographical issues that people encounter in seeking care. Data on all board-certified genetics providers were analyzed including Medical Geneticists (MG) and Genetic Counselors (GC) in California. To assess distance traveled for care, we computed the distance patients traveled for n=288 visits to UCSF Medical Genetics. We performed geographic optimization to minimize the distance to genetics providers. The provider-to-patient ratio in California is 1:330,000 for MG, 1:100,000 for GC, and 1:1,520,000 for biochemical MG. Genetics providers are concentrated in major metropolitan areas in California. People travel up to 386 miles for genetics care within the State (mean=76.6miles). There are substantial geographic barriers to genetics care that could increase disparities. Our findings highlight a challenging genetics workforce shortage. The shortage may be even greater due to care subspecialization or lack of full-time equivalency and staffing. We are currently promoting efforts to increase remote healthcare options, training, and modified models of care.
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影响因子：
1.9
作者：
Hoskovec, Jennifer M.;Bennett, R. L.;Wicklund, C. A.
通讯作者：
Wicklund, C. A.
影响因子：
8.8
作者：
Cooksey, Judith A.;Forte, Gaetano;Blitzer, Miriam G.
通讯作者：
Blitzer, Miriam G.
DOI：
10.1002/ajmg.10010
发表时间：
2001-09-01
期刊：
AMERICAN JOURNAL OF MEDICAL GENETICS
影响因子：
--
作者：
Greendale, K;Pyeritz, RE
通讯作者：
Pyeritz, RE
DOI：
10.1038/gim.2017.38
发表时间：
2017-09
期刊：
Genetics in medicine : official journal of the American College of Medical Genetics
影响因子：
--
作者：
Korf BR;Blitzer MG;Demmer LA;Feldman GL;Watson MS
通讯作者：
Watson MS
影响因子：
2.9
作者：
Elwyn, Glyn;Edwards, Adrian;Gray, Jonathon
通讯作者：
Gray, Jonathon