Care, Disability and HIV in Africa: diverging or interconnected concepts and practices?

Care, Disability and HIV in Africa: diverging or interconnected concepts and practices?
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非洲的护理、残疾和艾滋病毒:不同或相互关联的概念和实践?

DOI:
10.1080/01436597.2011.604517
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发表时间:
2011
影响因子:
2
通讯作者:
Evans R
Evans R
中科院分区:
经济学3区
文献类型:
--
作者:
Evans R

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最近的研究和政策已经认识到全球南方无薪护理人员(通常是妇女和女孩)的核心作用。然而,残疾人权利的观点对“照顾”和“依赖”的语言提出了挑战。借鉴定性研究与妇女艾滋病毒感染者和儿童照顾他们在坦桑尼亚,并从全国社区的妇女艾滋病毒感染者和艾滋病在乌干达(NACWOLA)的学习,本文探讨的分歧和相互联系的概念和做法之间的照顾,残疾和艾滋病毒在东非的背景。尽管相互依存的护理关系的发展,护理人员和艾滋病毒感染者在坦桑尼亚的经验“减少的幸福感”。然而,艾滋病毒感染者,包括残疾人,参与家庭护理和同伴支持小组,可以增强护理提供者和护理接受者的“关系自主”。我们反思残疾人、艾滋病毒感染者和护理人员相互学习和跨运动宣传的机会和挑战。
Recent research and policy have recognised the central role of unpaid care-givers (often women and girls) in the global South. Disability rights perspectives, however, challenge the language of ‘care’ and ‘dependence’. Drawing on qualitative research with women living withHIVand children caring for them in Tanzania, and on learning from the National Community of Women Living withHIVandAIDSin Uganda (NACWOLA), this paper explores the divergences and interconnections between the concepts and practices of care, disability andHIVin the context of East Africa. Despite the development of interdependent caring relations, both care-givers and people living withHIVin Tanzania experience ‘diminished autonomy’. The participation of people living withHIV, including disabled people, in home-based care and in peer support groups, however, can enhance ‘relational autonomy’ for both care-givers and care-recipients. We reflect on opportunities and challenges for mutual learning and cross-movement advocacy by disabled people, people living withHIVand care-givers.
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