Beyond inclusion: Enacting team equity in precision medicine research.
Beyond inclusion: Enacting team equity in precision medicine research.
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DOI：
10.1371/journal.pone.0263750
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发表时间：
2022
期刊：
影响因子：
3.7
通讯作者：
Lee SS
中科院分区：
文献类型：
--
作者：
Jeske M;Vasquez E;Fullerton SM;Saperstein A;Bentz M;Foti N;Shim JK;Lee SS
为了确定基因组学研究公平多样化的意义和挑战，特别是精准医学研究（PMR），团队。我们对102名参与三个美国-基于精准医学研究联盟，并进行了超过400小时的工作组会议，联盟范围内的会议和会议演示的观察。我们还回顾了已发表的关于基因组劳动力多样性（WFD）的报告，特别是与PMR社区相关的报告。我们的研究发现，许多PMR团队在努力实现科学团队的公平多样化时遇到了挑战。受访者明确表示，代表性不足的团队成员往往被雇用，以增加研究的能力，招募不同的研究参与者，但仅限于在地面工作人员的职位，对研究设计的影响力不大。我们发现学术研究生态系统中现有的等级制度和权力结构对公平多样化构成了挑战。我们的研究结果表明，有意义的多样化的PMR团队将只可能当团队公平优先作为一个核心价值在学术研究社区。
To identify meanings of and challenges to enacting equitable diversification of genomics research, and specifically precision medicine research (PMR), teams. We conducted in-depth interviews with 102 individuals involved in three U.S.-based precision medicine research consortia and conducted over 400 observation hours of their working group meetings, consortium-wide meetings, and conference presentations. We also reviewed published reports on genomic workforce diversity (WFD), particularly those relevant to the PMR community. Our study finds that many PMR teams encounter challenges as they strive to achieve equitable diversification on scientific teams. Interviewees articulated that underrepresented team members were often hired to increase the study’s capacity to recruit diverse research participants, but are limited to on-the-ground staff positions with little influence over study design. We find existing hierarchies and power structures in the academic research ecosystem compound challenges for equitable diversification. Our results suggest that meaningful diversification of PMR teams will only be possible when team equity is prioritized as a core value in academic research communities.
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影响因子：
64.8
作者：
Green ED;Gunter C;Biesecker LG;Di Francesco V;Easter CL;Feingold EA;Felsenfeld AL;Kaufman DJ;Ostrander EA;Pavan WJ;Phillippy AM;Wise AL;Dayal JG;Kish BJ;Mandich A;Wellington CR;Wetterstrand KA;Bates SA;Leja D;Vasquez S;Gahl WA;Graham BJ;Kastner DL;Liu P;Rodriguez LL;Solomon BD;Bonham VL;Brody LC;Hutter CM;Manolio TA
通讯作者：
Manolio TA
影响因子：
6.3
作者：
Braveman, P;Gruskin, S
通讯作者：
Gruskin, S
影响因子：
3.7
作者：
Gibbs, Kenneth D., Jr.;Griffin, Kimberly A.
通讯作者：
Griffin, Kimberly A.
DOI：
10.1073/pnas.1915378117
发表时间：
2020-04-28
影响因子：
11.1
作者：
Hofstra, Bas;Kulkarni, Vivek V.;McFarland, Daniel A.
通讯作者：
McFarland, Daniel A.
影响因子：
16.6
作者：
AlShebli, Bedoor K.;Rahwan, Talal;Woon, Wei Lee
通讯作者：
Woon, Wei Lee