Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal: a descriptive study.
Frequency of reporting on patient and public involvement (PPI) in research studies published in a general medical journal: a descriptive study.
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DOI：
10.1136/bmjopen-2017-020452
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发表时间：
2018-03-23
期刊：
影响因子：
2.9
通讯作者：
Richards T
中科院分区：
文献类型：
--
作者：
Price A;Schroter S;Snow R;Hicks M;Harmston R;Staniszewska S;Parker S;Richards T
虽然病人和公众参与研究(PPI)的书面计划在许多拨款申请中都是必需的，但人们对PPI在实践中发生的频率知之甚少。由于有限的PPI报告要求，报告的PPI水平较低可能会掩盖实际活动。这项研究分析了在存在和不存在日记要求的情况下报告的PPI的频率和类型。在《英国医学杂志》上发表的研究论文中，在引入一项要求作者报告是否以及如何在其论文中涉及患者和公众的期刊政策之前和一年后，对PPI进行了前后比较。 。在2013年6月1日至2014年5月31日期间，英国医学杂志发表了189篇研究论文，其中1篇(0.5%)报告了PPI活动。自2015年6月1日至2016年5月31日，在该政策出台后，英国医学杂志发表了152篇研究论文，其中16篇(11%)报告了PPI活动。除了设计研究、合作和参与研究传播之外，患者还为资助申请做出了贡献。患者的贡献者往往没有得到充分的承认；17篇论文中有6篇(35%)承认了他们的贡献，2篇(12%)将他们列为合著者。不经常报告购买力平价活动似乎并不完全是由于文件的错误。在BMJ的政策出台后，PPI活动的报告有所增加，但活动前后的报告都很低，报告的质量也不一致。期刊、资助者和研究机构应该合作，将我们从目前PPI是可选的额外内容转变为PPI在整个研究过程中完全嵌入实践的情况。
While documented plans for patient and public involvement (PPI) in research are required in many grant applications, little is known about how frequently PPI occurs in practice. Low levels of reported PPI may mask actual activity due to limited PPI reporting requirements. This research analysed the frequency and types of reported PPI in the presence and absence of a journal requirement to include this information. A before and after comparison of PPI reported in research papers published in The BMJ before and 1 year after the introduction of a journal policy requiring authors to report if and how they involved patients and the public within their papers. Between 1 June 2013 and 31 May 2014, The BMJ published 189 research papers and 1 (0.5%) reported PPI activity. From 1 June 2015 to 31 May 2016, following the introduction of the policy, The BMJ published 152 research papers of which 16 (11%) reported PPI activity. Patients contributed to grant applications in addition to designing studies through to coauthorship and participation in study dissemination. Patient contributors were often not fully acknowledged; 6 of 17 (35%) papers acknowledged their contributions and 2 (12%) included them as coauthors. Infrequent reporting of PPI activity does not appear to be purely due to a failure of documentation. Reporting of PPI activity increased after the introduction of The BMJ’s policy, but activity both before and after was low and reporting was inconsistent in quality. Journals, funders and research institutions should collaborate to move us from the current situation where PPI is an optional extra to one where PPI is fully embedded in practice throughout the research process.
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影响因子：
105.7
作者：
Hippisley-Cox, Julia;Coupland, Carol
通讯作者：
Coupland, Carol
DOI：
10.1111/hex.12295
发表时间：
2016-06
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
--
作者：
Boaz A;Biri D;McKevitt C
通讯作者：
McKevitt C
影响因子：
2.9
作者：
Braithwaite J
通讯作者：
Braithwaite J
影响因子：
2.8
作者：
Domecq, Juan Pablo;Prutsky, Gabriela;Murad, Mohammad Hassan
通讯作者：
Murad, Mohammad Hassan
DOI：
10.1136/bmj.h3267
发表时间：
2015-07-08
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Andersson N;Nava-Aguilera E;Arosteguí J;Morales-Perez A;Suazo-Laguna H;Legorreta-Soberanis J;Hernandez-Alvarez C;Fernandez-Salas I;Paredes-Solís S;Balmaseda A;Cortés-Guzmán AJ;Serrano de Los Santos R;Coloma J;Ledogar RJ;Harris E
通讯作者：
Harris E