Exploring the digital support needs of caregivers of people with serious mental illness
Exploring the digital support needs of caregivers of people with serious mental illness
复制标题
探索严重精神疾病患者的护理人员的数字支持需求
DOI：
10.1145/3544548.3580674
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发表时间：
2023
期刊：
影响因子：
--
通讯作者：
P. Olivier
中科院分区：
文献类型：
--
作者：
Farheen Siddiqui;Delvin Varghese;Pushpendra Singh;Sunita Bapuji Bayyavarapu;Stephen Lindsay;Dharshani Chandrasekara;Pranav Kulkarni;Ling Wu;Taghreed Alshehri;P. Olivier
在像印度这样的中低收入国家，鉴于医疗保健系统缺乏支持，患有严重精神疾病的人（PSMI）依赖家庭作为主要的护理来源。护理工作的高要求性质对护理人员的身心都造成了重大压力，而他们是PSMI患者的主要支持来源。我们探讨在资源匮乏的环境下，如何通过日常数字技术更好地支持护理人员。我们对（来自印度城市和农村的）护理人员进行了访谈，还与直接为PSMI患者服务的印度非政府组织的专业人员举办了研讨会。我们发现，技术有可能（1）提供以护理人员为中心的支持，增强那些遭受歧视以及现有支持网络存在问题的护理人员的能力；（2）为护理人员提供支持，以克服障碍，促进PSMI患者的康复。最后我们提出了设计方面的考虑因素，提议一个在线同伴社区如何利用护理人员的专业知识来实现支持服务。
In low-and middle-income countries like India, people with severe mental illness (PSMI) rely on their families as a primary source of care, given the lack of support from healthcare systems. The demanding nature of caregiving places significant physical and mental demands on caregivers, who are the primary source of support to PSMI. We explore how caregivers in under-resourced settings can be better supported through everyday digital technologies. We conducted interviews with caregivers (from urban and rural India), as well as workshops with professionals from Indian NGOs that work directly with PSMIs. We found that technology has the potential to (1) provide carer-centred support that empowers carers who experience stigma and issues with existing support networks; (2) provide support for carers to overcome barriers and progress in the recovery of the PSMI. We conclude with design considerations, proposing how an online peer community can leverage carers’ expertise to actualise support provision.
影响因子：
5.4
作者：
Yang, Lawrence Hsin;Kleinman, Arthur;Good, Byron
通讯作者：
Good, Byron