Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study.
Comparing fears about paediatric HIV disclosure to the lived experiences of parents and guardians: a prospective cohort study.
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DOI：
10.1080/08870446.2022.2041637
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发表时间：
2023-11
影响因子：
3.3
通讯作者：
Green, Eric P.
中科院分区：
文献类型：
--
作者：
Puffer, Eve S.;Finnegan, Amy;Schenk, Katie;Langhaug, Lisa;Rusakaniko, Simbarashe;Choi, Yujung;Mahaso, Simbarashe;Simmons, Ryan;Green, Eric P.
我们的目标是：（1）通过儿科艾滋病毒披露过程跟踪父母和监护人，以了解披露前的担忧实现的频率;（2）估计披露对儿童，照顾者和家庭福祉的影响。我们在津巴布韦进行了一项为期12个月的前瞻性队列研究，其中有123名9至15岁儿童的主要照顾者，他们是HIV阳性，但不知道基线时的血清状态。到研究期结束时，65名照顾者报告说，他们的孩子得知自己的艾滋病毒呈阳性。我们使用了三波数据来比较护理人员的披露前担忧和披露后报告，并描述披露与儿童（优势和困难问卷），护理人员（患者健康问卷-9）和家庭（家庭关系质量）之间的关联。照顾者在披露艾滋病毒状况前对孩子会如何反应的担忧和恐惧在很大程度上没有实现。此外，我们没有发现强有力的证据表明，在披露后，平均而言，临床上重要的问题增加。研究结果支持呼吁确定支持性干预策略，解决照顾者的恐惧在披露过程的开始。
We aimed to: (1) follow parents and guardians through the process of pediatric HIV disclosure to understand how often pre-disclosure worries are realized; and (2) estimate the effects of disclosure on child, caregiver, and family well-being. We conducted a 12-month prospective cohort study in Zimbabwe with 123 primary caregivers of children ages 9 to 15 years who were HIV positive but did not know their serostatus at baseline. By the end of the study period 65 caregivers reported that their child learned his or her HIV-positive status. We used three waves of data to compare caregivers’ pre-disclosure worries to post-disclosure reports and to characterize associations between disclosure and well-being of the child (Strengths and Difficulties Questionnaire), caregiver (Patient Health Questionnaire-9), and family (Family Relationship Quality) over time. Caregivers’ pre-disclosure worries and fears about how their child would react to disclosure of their HIV status largely went unrealized. Furthermore, we did not find strong evidence of clinically-important increases in problems on average following disclosure. Findings support the call to identify supportive intervention strategies that address caregiver fears at the beginning of the disclosure process.
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影响因子：
3.7
作者：
Bygrave H;Mtangirwa J;Ncube K;Ford N;Kranzer K;Munyaradzi D
通讯作者：
Munyaradzi D
影响因子：
2
作者：
Domek, Gretchen J.
通讯作者：
Domek, Gretchen J.
影响因子：
3.7
作者：
Finnegan, Amy;Langhaug, Lisa;Green, Eric P.
通讯作者：
Green, Eric P.
影响因子：
6
作者：
Kajubi, Phoebe;Whyte, Susan;Katahoire, Anne R.
通讯作者：
Katahoire, Anne R.
影响因子：
4.9
作者：
Fetzer, Bradley C.;Mupenda, Bavon;Behets, Frieda
通讯作者：
Behets, Frieda