Improving Breast Cancer Family Caregivers’ Palliative Care Literacy: A Pilot Randomized Trial
Improving Breast Cancer Family Caregivers’ Palliative Care Literacy: A Pilot Randomized Trial
复制标题
提高乳腺癌家庭护理人员的姑息治疗素养：一项试点随机试验
作者：
Dena J. Schulman;Sarah Linsky;L. Blatt;Jane Jeuland;Jennifer M. Kapo;S. Jeon
自我和家庭管理（SFM）是指患者和家庭照顾者共同管理疾病的活动。可持续森林管理的两个障碍是姑息护理知识水平低和缺乏护理沟通的目标，这可能导致可持续森林管理活动不支持患者的目标。《癌症护理管理：护理人员指南》（MCC-CG）旨在提高可持续森林管理培训计划中的姑息护理知识和沟通。在这项试点随机试验中，我们招募了乳腺癌家庭护理人员，并在0，1和3个月收集了姑息治疗素养，SFM参与，沟通，过渡管理，不确定性，护理人员负担和护理人员能力/个人收益的数据。参与者（n = 35）的平均年龄为54岁（范围：18-81岁），66%为白色，34%为少数民族。干预参与者提高了他们的姑息治疗素养和可持续森林管理的参与，减少了不确定性和照顾者的负担，增加了能力/个人收益，并随着时间的推移有更多的目标护理对话。MCC-CG具有初步疗效，有待进一步研究。
Self- and family management (SFM) refers to patients’ and family caregivers’ activities to co-manage illness. Two barriers to SFM are low palliative care literacy and lack of goals of care communication, which potentially result in SFM activities that are unsupportive of patients’ goals. Managing Cancer Care: A Caregiver’s Guide (MCC-CG) aims to improve palliative care literacy and communication within a SFM training program. In this pilot randomized trial, we enrolled breast cancer family caregivers and collected data at 0, 1, and 3 months on palliative care literacy, SFM engagement, communication, transitions management, uncertainty, caregiver burden, and caregiver competence/personal gain. Participants (n = 35) had a mean age of 54 (range: 18–81) and were 66% white and 34% racial/ethnic minorities. Intervention participants improved their palliative care literacy and SFM engagement, reduced uncertainty and caregiver burden, increased competence/personal gain, and had more goals of care conversations over time. MCC-CG has preliminary efficacy, warranting further study.
影响因子：
5.7
作者：
PEARLIN, LI;MULLAN, JT;SKAFF, MM
通讯作者：
SKAFF, MM
DOI：
10.1016/j.ejon.2021.101933
发表时间：
2021-06
期刊：
European journal of oncology nursing : the official journal of European Oncology Nursing Society
影响因子：
--
作者：
Thomas Hebdon MC;Coombs LA;Reed P;Crane TE;Badger TA
通讯作者：
Badger TA