Being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years: a phenomenological study of parents' experiences.
Being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years: a phenomenological study of parents' experiences.
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DOI：
10.1080/17482631.2018.1487758
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发表时间：
2018-12
影响因子：
1.8
通讯作者：
Råheim M
中科院分区：
文献类型：
--
作者：
Iversen AS;Graue M;Haugstvedt A;Råheim M
目的：学龄前儿童糖尿病的诊断提出了一些与日常责任相关的独特挑战，以及对监督和照顾的持续需求。这可能会影响孩子和父母感受到的由这种情况造成的负担。这项研究的目的是探索作为1至7岁1型糖尿病儿童的父亲和母亲的生活经历。方法：本研究植根于范马南所描述的解释现象学方法论。进行了深入的访谈，以收集数据。调查结果。我们在采访中发现了一个基本主题：努力过一种普通的家庭生活，但感觉和生活却截然不同--有相互关联的副主题：改变生活的情况，时刻保持警惕，努力放手。总结：父母描述了一个深刻变化的情况，他们确实在努力像一个“正常”的家庭一样生活。他们需要门诊医护人员的支持，不仅在实际工作中需要支持和监督，而且在处理改变的生活状况和情绪反应方面也需要支持和监督，特别是在确诊后的第一年。
Purpose: The diagnosis of diabetes in pre-school children poses a number of unique challenges related to everyday responsibility, and the continuous need for supervision and caregiving. This may affect both the child’s and the parents’ perceived burden caused by the condition. The aim of the study was to explore the lived experience of being mothers and fathers of a child with type 1 diabetes aged 1 to 7 years. Methods: The study is rooted in an interpretive phenomenological methodology as described by van Manen. In-depth interviews were carried out to collect data. Findings. We were able to identify one essential theme across the interviews: Striving to live an ordinary family life, yet feeling and living very differently—with interrelated sub-themes: A life-changing situation, Always on guard, and Struggling to let go. Conclusion: Parents described a profoundly changed situation, and they were indeed striving to live like a “normal” family. They were in need of support from health care professionals at the outpatient clinic, not only support and supervision in regard to practical tasks, but also concerning handling a changed life situation and emotional reactions, especially in the first year after diagnosis.
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影响因子：
3.8
作者：
Lindstrom, C.;Aman, J.;Norberg, A. L.
通讯作者：
Norberg, A. L.
影响因子：
3.5
作者：
Haugstvedt, A.;Wentzel-Larsen, T.;Rokne, B.
通讯作者：
Rokne, B.
影响因子：
4.2
作者：
Streisand, Randi;Monaghan, Maureen
通讯作者：
Monaghan, Maureen
DOI：
10.1097/01.chi.0000161645.98022.35
发表时间：
2005-07-01
影响因子：
13.3
作者：
Landolt, MA;Vollrath, M;Sennhauser, FH
通讯作者：
Sennhauser, FH
影响因子：
3.2
作者：
van Manen, M
通讯作者：
van Manen, M