User Preferences and Design Recommendations for an mHealth App to Promote Cystic Fibrosis Self-Management.
User Preferences and Design Recommendations for an mHealth App to Promote Cystic Fibrosis Self-Management.
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DOI：
10.2196/mhealth.3599
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发表时间：
2014-10-24
影响因子：
5
通讯作者：
Riekert KA
中科院分区：
文献类型：
--
作者：
Hilliard ME;Hahn A;Ridge AK;Eakin MN;Riekert KA
移动医疗应用程序有潜力为慢性病患者的治疗依从性提供自动化、量身定制的支持。然而，指导应用程序开发的实证研究相对较少，最终用户很少参与设计最适合其需求的应用程序特性或功能。自我管理应用程序对于患有囊性纤维化 (CF) 等慢性病且需要复杂且要求严格的治疗方案的人来说可能特别有用。这项混合方法研究的目的是让 CF 患者参与指导开发有吸引力、有效、用户友好的依从性推广应用程序，以满足他们的偏好和自我管理需求。患有 CF 的成年人（n = 16，年龄 21-48 岁，50% 男性）通过安全网络调查提供定量数据，并通过半结构化电话访谈提供定性数据，内容涉及以前使用一般应用程序和健康应用程序的经验，以及未来潜在应用程序的首选和不需要的功能，以支持 CF 自我管理。参与者是智能手机用户，他们表示每天都会在智能手机或设备上发送或接收短信（93%，14/15）或电子邮件（80%，12/15），87%（13/15）表示放弃智能手机有些困难或非常困难。大约一半（53%，8/15）的受访者表示拥有健康应用程序，所有这些应用程序都与饮食/体重相关，但许多人表示现有的营养应用程序不太适合 CF 管理。参与者希望应用程序支持 CF 自我管理，具有多种功能而不是单一功能（例如简单的警报）、针对 CF 以及最大限度地减少用户负担等特点。所需的 CF 应用程序功能的共同主题是触手可及的信息、疾病管理活动（例如药房补充）的自动化、与智能手机技术功能的集成、加强与医疗保健团队的沟通以及促进 CF 社区内的社交化。关于游戏化和赚取奖励或奖品的意见不一。参与者强调需要定制选项以满足个人偏好和疾病管理目标。新兴智能手机技术的独特功能（例如，社交网络集成、运动和位置检测、集成传感器或电子监视器）使许多这些要求成为可能。让最终用户参与移动医疗应用程序开发的所有阶段，并与技术专家和医疗保健系统合作，可能会导致应用程序保持参与、提高集成和自动化，并最终影响自我管理和健康结果。
mHealth apps hold potential to provide automated, tailored support for treatment adherence among individuals with chronic medical conditions. Yet relatively little empirical research has guided app development and end users are infrequently involved in designing the app features or functions that would best suit their needs. Self-management apps may be particularly useful for people with chronic conditions like cystic fibrosis (CF) that have complex, demanding regimens. The aim of this mixed-methods study was to involve individuals with CF in guiding the development of engaging, effective, user-friendly adherence promotion apps that meet their preferences and self-management needs. Adults with CF (n=16, aged 21-48 years, 50% male) provided quantitative data via a secure Web survey and qualitative data via semi-structured telephone interviews regarding previous experiences using apps in general and for health, and preferred and unwanted features of potential future apps to support CF self-management. Participants were smartphone users who reported sending or receiving text messages (93%, 14/15) or emails (80%, 12/15) on their smartphone or device every day, and 87% (13/15) said it would be somewhat or very hard to give up their smartphone. Approximately one-half (53%, 8/15) reported having health apps, all diet/weight-related, yet many reported that existing nutrition apps were not well-suited for CF management. Participants wanted apps to support CF self-management with characteristics such as having multiple rather than single functions (eg, simple alarms), being specific to CF, and minimizing user burden. Common themes for desired CF app features were having information at one’s fingertips, automation of disease management activities such as pharmacy refills, integration with smartphones’ technological capabilities, enhancing communication with health care team, and facilitating socialization within the CF community. Opinions were mixed regarding gamification and earning rewards or prizes. Participants emphasized the need for customization options to meet individual preferences and disease management goals. Unique capabilities of emerging smartphone technologies (eg, social networking integration, movement and location detection, integrated sensors, or electronic monitors) make many of these requests possible. Involving end users in all stages of mHealth app development and collaborating with technology experts and the health care system may result in apps that maintain engagement, improve integration and automation, and ultimately impact self-management and health outcomes.
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DOI：
10.1089/tmj.2008.0099
发表时间：
2009-04-01
期刊：
TELEMEDICINE JOURNAL AND E-HEALTH
影响因子：
--
作者：
Krishna, Santosh;Boren, Suzanne Austin;Balas, E. Andrew
通讯作者：
Balas, E. Andrew
影响因子：
3.7
作者：
Finitsis DJ;Pellowski JA;Johnson BT
通讯作者：
Johnson BT
影响因子：
5.2
作者：
Eakin, Michelle N.;Bilderback, Andrew;Riekert, Kristin A.
通讯作者：
Riekert, Kristin A.
影响因子：
7.4
作者：
Burns MN;Begale M;Duffecy J;Gergle D;Karr CJ;Giangrande E;Mohr DC
通讯作者：
Mohr DC
影响因子：
2.5
作者：
King, Diane K.;Toobert, Deborah J.;Glasgow, Russell E.
通讯作者：
Glasgow, Russell E.