Identifying health literacy and health system navigation needs among rural cancer patients: findings from the Rural Oncology Literacy Enhancement Study (ROLES).

Identifying health literacy and health system navigation needs among rural cancer patients: findings from the Rural Oncology Literacy Enhancement Study (ROLES).
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在农村癌症患者中确定健康素养和卫生系统导航需求:农村肿瘤学素养增强研究(角色)的发现。

DOI:
10.1007/s13187-013-0505-x
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发表时间:
2013-09
期刊:
Journal of cancer education : the official journal of the American Association for Cancer Education
影响因子:
--
通讯作者:
Wang X
Wang X
中科院分区:
其他
文献类型:
--
作者:
Martinez-Donate AP;Halverson J;Simon NJ;Strickland JS;Trentham-Dietz A;Smith PD;Linskens R;Wang X

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农村居住与癌症相关结果的差异有关。在慢性病护理模式(CCM)的指导下,农村肿瘤学素养提高研究(ROLES)评估了农村癌症患者的健康素养和患者导航需求。采用混合方法(定性和定量),包括:深入访谈,健康素养评估,并与癌症患者(N=53)从农村威斯康星州的5个肿瘤诊所的电话调查;焦点小组和自我管理的调查工作人员(N=41)在这些诊所。在CCM的四个维度(社区资源,自我管理支持,交付系统设计和决策支持)中,本研究揭示了多种未满足的导航需求,健康素养限制以及优质癌症护理的障碍。在系统一级实施患者导航和健康素养最佳做法,有助于改善农村人口的癌症护理和患者预后。有必要进一步研究确定有效的干预措施,以减少农村癌症患者之间的癌症差异。
Rural residence is associated with disparities in cancer-related outcomes. Guided by the Chronic Care Model (CCM), the Rural Oncology Literacy Enhancement Study (ROLES) assessed health literacy and patient navigation needs among rural cancer patients. A mixed methods (qualitative and quantitative) approach was used, including: in-depth interviews, health literacy assessments, and phone surveys with cancer patients (N=53) from 5 oncology clinics in rural Wisconsin; focus groups and selfadministered surveys with staff (N=41) in these clinics. Within four dimensions of the CCM (community resources, self-management support, delivery system design, and decision support), this study uncovered multiple unmet navigation needs, health literacy limitations, and barriers to quality cancer care. System-level implementation of patient navigation and health literacy best practices could contribute to improved cancer care and patient outcomes among rural populations. Further research identifying effective interventions that reduce cancer disparities among rural cancer patients is necessary.
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