Lay Caregivers' Experiences With Caring for Persons With Dementia: A Phenomenological Study.
Lay Caregivers' Experiences With Caring for Persons With Dementia: A Phenomenological Study.
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DOI：
10.3928/00989134-20200527-02
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发表时间：
2020-08-01
影响因子：
1.3
通讯作者：
Peavy GM
中科院分区：
文献类型：
--
作者：
Mayo AM;Siegle K;Savell E;Bullock B;Preston GJ;Peavy GM
当今的生物医学进步使老年人（包括患有痴呆症的老年人）寿命更长，而且大多数人与非专业护理人员一起生活在家里。最近的研究记录了照顾痴呆症患者 (PWD) 所承受的压力。这项定性现象学研究描述了照顾残疾人的护理人员的生活经历，包括他们的姑息治疗经历。对非专业护理人员的社区样本（N = 11）进行了录音的个人访谈（每次约一小时）。按照范马南分离主题陈述的方法对采访进行了分析。大多数护理人员年龄较大（男 71 岁，标准差 9.6；范围 53-84 岁）和女性（n=10）。研究主题包括：不确定性：滑坡、孤独感、挫败感的复杂性以及光谱的另一边。调查结果表明，这些护理人员正在处理有关他们经历的一系列动态感受。医疗保健专业人员有机会讨论这些感受，并向护理人员推荐包括姑息治疗在内的支持服务。
Biomedical advancements today allow older adults, including those with dementia, to live longer, with most living at home with a lay caregiver. Recent research documents the stressful role of caregiving to persons with dementia (PWD). This qualitative phenomenological study describes the lived experience of caregivers caring for PWD, including their experience with palliative care. A community sample of lay caregivers (N=11) underwent recorded individual interviews (each approximately one hour). Interviews were analyzed following van Manen’s approach to isolate thematic statements. Most caregivers were older (M 71, SD 9.6; range 53–84 years) and female (n=10). Study themes included: Uncertainty: The Slippery Slope, The Sense of Loneliness, Complexities of Frustration, and On the Other Side of the Spectrum. Findings illustrate that these caregivers are dealing with a range of dynamic feelings about their experiences. Opportunities exist for health care professionals to discuss such feelings and refer caregivers to supportive services including palliative care.
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影响因子：
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影响因子：
7.4
作者：
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通讯作者：
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影响因子：
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通讯作者：
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DOI：
10.1177/1533317512461555
发表时间：
2015-11-01
影响因子：
3.4
作者：
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