Why doesn't God say "enough"? Experiences of living with bipolar disorder in rural Ethiopia.
Why doesn't God say "enough"? Experiences of living with bipolar disorder in rural Ethiopia.
复制标题
神为什么不说“够了”？
DOI：
10.1016/j.socscimed.2020.113625
复制
发表时间：
2021
期刊：
影响因子：
--
通讯作者：
Mayston,Rosie
中科院分区：
文献类型：
--
作者：
Demissie,Mekdes;Hanlon,Charlotte;Ng,Lauren;Fekadu,Abebaw;Mayston,Rosie
在农村，资源匮乏的环境中，双相情感障碍患者的具体经历知之甚少，在那里，破坏正常社会交往的条件往往是高度污名化的，基于证据的治疗是罕见的。和双相情感障碍（PBD）患者的疾病后果在埃塞俄比亚农村地区，作为发展基于PBD经验的心理社会干预的第一步，对27名个人（15名PBD和12名照顾者）进行了深入访谈。参与者是根据以前对严重精神疾病患者的社区研究确定的。访谈用阿姆哈拉语进行，录音、转录并翻译成英文。采用专题分析法对数据进行分析。我们的方法是由现象学theory.ResultThree主要主题出现：疾病的表达和经验，管理自我和生活与他人，痛苦的成本。PBD和照顾者所关注的疾病预警不同。耻辱和社会排斥形成了一个恶性循环，既影响了患病经历，也影响了家庭的经济健康和社会生活。尽管如此，PBD和照顾者从他们的经验中学习，制定应对策略，并寻求救济信任的关系，灵性，和medication.ConclusionOur研究结果表明，心理社会干预可以用来加强现有的资源，以改善生活的PBD和他们的家庭成员。然而，普遍存在的污名化可能是团体和同伴支助办法的一个障碍。
RationaleLittle is known about the specific experience people living with bipolar disorder in rural, low resource settings, where conditions that disrupt normal social interactions are often highly stigmatized and evidence-based treatments are rare.ObjectiveTo explore illness experience, coping strategies, help-seeking practices, and consequences of illness among people with bipolar disorder (PBD) and their family members in rural Ethiopia as an initial step for developing psychosocial intervention grounded by the experiences of PBD.MethodA qualitative methods using in-depth interviews were carried out with 27 individuals (15 PBD and 12 caregivers). The participants were identified on the basis of previous community-based research among people with severe mental illness. Interviews were carried out in Amharic, audio-recorded, transcribed, and translated into English. Data were analyzed using thematic analysis. Our approach was informed by phenomenological theory.ResultThree major themes emerged: expressions and experiences of illness, managing self and living with otherness, and the costs of affliction. PBD and caregivers were concerned by different forewarnings of illness. Stigma and social exclusion were entwined in a vicious cycle that shaped both illness experience and the economic health and social life of the household. Nonetheless, PBD and caregivers learned from their experiences, developed coping strategies, and sought relief from trusted relationships, spirituality, and medication.ConclusionOur findings suggest that psychosocial intervention could be used to strengthen existing resources, in order to improve the lives of PBD and their family members. However, pervasive stigma may be a barrier to group and peer support approaches.
登录
查看更多内容
影响因子：
7.2
作者：
Pontin, Eleanor;Peters, Sarah;Lobban, Fiona;Rogers, Anne;Morriss, Richard K.
通讯作者：
Morriss, Richard K.
影响因子：
15.8
作者：
Dua T;Barbui C;Clark N;Fleischmann A;Poznyak V;van Ommeren M;Yasamy MT;Ayuso-Mateos JL;Birbeck GL;Drummond C;Freeman M;Giannakopoulos P;Levav I;Obot IS;Omigbodun O;Patel V;Phillips M;Prince M;Rahimi-Movaghar A;Rahman A;Sander JW;Saunders JB;Servili C;Rangaswamy T;Unützer J;Ventevogel P;Vijayakumar L;Thornicroft G;Saxena S
通讯作者：
Saxena S
影响因子：
6.6
作者：
Dore, G;Romans, SE
通讯作者：
Romans, SE
家庭成员的经历：患有双相情感障碍和药物滥用障碍的人
影响因子：
8
作者：
Uwarren September;Anna
通讯作者：
Anna
埃塞俄比亚布塔吉拉 I 型双相情感障碍的患病率和临床特征：一项基于社区的研究。
影响因子：
6.6
作者：
A. Negash;A. Alem;D. Kebede;N. Deyessa;T. Shibre;G. Kullgren
通讯作者：
G. Kullgren