The start of the transplant journey: referral for pediatric solid organ transplantation.

The start of the transplant journey: referral for pediatric solid organ transplantation.
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DOI:
10.1111/petr.12215
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发表时间:
2014-03
影响因子:
1.3
通讯作者:
Wray J
Wray J
中科院分区:
医学4区
文献类型:
--
作者:
Shellmer D;Brosig C;Wray J

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大多数心理移植文献的重点是移植后的结果,但移植之旅开始得比这早得多,在移植是第一次考虑和移植评估转诊时。在这篇综述中,我们涵盖了实体器官移植转诊过程的意义。我们讨论了各种因素的转诊移植,包括转诊对儿科患者和家庭的影响,潜在的期望和误解举行的儿科患者和家长,健康素养的作用,决策因素,和信息需求的儿科患者和家长。我们阐明了提供者可以采取的步骤,以加强移植转诊,并提供了在这一领域急需的研究建议。
The focus of the majority of the psychosocial transplant literature is on post-transplant outcomes but the transplant journey starts much earlier than this, at the point when transplantation is first considered and a referral for transplant evaluation is made. In this review we cover information regarding the meaning of the referral process for solid organ transplantation. We discuss various factors of the referral for transplantation including the impact of referral on the pediatric patient and the family, potential expectations and misconceptions held by pediatric patients and parents, the role of health literacy, decision making factors, and the informational needs of pediatric patients and parents. We elucidate steps that providers can take to enhance transplant referral and provide suggestions for much needed research within this area.
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