Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: qualitative findings from a national survey.
Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: qualitative findings from a national survey.
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DOI：
10.1186/s12904-022-01066-4
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发表时间：
2022-10-10
影响因子：
3.1
通讯作者：
Selman, Lucy E.
中科院分区：
文献类型：
--
作者：
Harrop, Emily;Goss, Silvia;Longo, Mirella;Seddon, Kathy;Torrens-Burton, Anna;Sutton, Eileen;Farnell, Damian J. J.;Penny, Alison;Nelson, Annmarie;Byrne, Anthony;Selman, Lucy E.
在COVID-19大流行期间，许多儿童和年轻人经历了亲密家庭成员的死亡，同时也面临着前所未有的生活中断。本研究旨在从父母及监护人的角度，探讨丧亲儿童及青少年的经历及支援需求。我们分析了流行病期间对英国失去亲人的成年人进行调查的横断面定性自由文本数据。参与者通过媒体、社交媒体、国家协会和社区/慈善组织招募。自由文本数据进行了主题分析，从父母/监护人参与者在回答一个调查问题的丧亲经历和支持他们的孩子的需要。包括来自104名父母/监护人参与者的自由文本数据。确定了三个主题：儿童和青年人面临的与流行病有关的挑战和斗争;家庭支持和应对;学校和服务部门的支持。流行病的挑战包括在亲人去世前与亲人分离、与同伴和其他家庭成员隔离、日常生活和更广泛的支持网络中断等影响。他们列举了有效的家庭应对和沟通的例子，但也列举了与父母悲痛和儿童现有的心理健康问题有关的困难。学校和丧亲组织提供的专家支持受到重视，但有证据表明需求未得到满足，一些参与者报告缺乏获得专业悲伤或心理健康支持的机会。儿童和青年面临着与大流行病丧亲有关的额外压力和挑战。我们建议的资源和倡议，促进家庭和学校环境中的支持性沟通，学校和社区为基础的专业丧亲/心理健康服务，并增加信息和路标，以支持可用的资源充足。在线版本包含补充材料，可通过10.1186/s12904-022-01066-4获得。
During the COVID-19 pandemic, many children and young people have experienced the death of close family members, whilst also facing unprecedented disruption to their lives. This study aimed to investigate the experiences and support needs of bereaved children and young people from the perspective of their parents and guardians. We analysed cross-sectional qualitative free-text data from a survey of adults bereaved in the UK during the pandemic. Participants were recruited via media, social media, national associations and community/charitable organisations. Thematic analysis was conducted on free text data collected from parent/guardian participants in response to a survey question on the bereavement experiences and support needs of their children. Free-text data from 104 parent/guardian participants was included. Three main themes were identified: the pandemic-related challenges and struggles experienced by children and young people; family support and coping; and support from schools and services. Pandemic-challenges include the impacts of being separated from the relative prior to their death, isolation from peers and other family members, and disruption to daily routines and wider support networks. Examples were given of effective family coping and communication, but also of difficulties relating to parental grief and children’s existing mental health problems. Schools and bereavement organisations’ provision of specialist support was valued, but there was evidence of unmet need, with some participants reporting a lack of access to specialist grief or mental health support. Children and young people have faced additional strains and challenges associated with pandemic bereavement. We recommend resources and initiatives that facilitate supportive communication within family and school settings, adequate resourcing of school and community-based specialist bereavement/mental health services, and increased information and signposting to the support that is available. The online version contains supplementary material available at 10.1186/s12904-022-01066-4.
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