Kawasaki Disease Arab Initiative [Kawarabi]: Establishment and Results of a Multicenter Survey.
Kawasaki Disease Arab Initiative [Kawarabi]: Establishment and Results of a Multicenter Survey.
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DOI：
10.1007/s00246-022-02844-w
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发表时间：
2022-08
影响因子：
1.6
通讯作者：
中科院分区：
文献类型：
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作者：
阿拉伯国家对川崎病（KD）的研究很少，往往提供不完整的数据。这与多中心研究合作的好处一起导致了KD阿拉伯倡议[Kawarabi]联盟的创建。在潜在的阿拉伯合作医疗机构中完成了一项匿名调查，以评估这些国家的KD负担和医生可用的资源。一份包含32个项目的在线调查问卷在进行面部效度后分发给参与机构。每个机构收集一份调查。来自12个国家的19名医生完成了调查，代表20家机构中的19家（回复率为95%）。15家（79%）机构在管理KD患者时参考了2017年美国心脏协会指南。静脉注射免疫球蛋白（IVIG）在2家机构（11%）不容易获得，但在该国可以获得。在一个中心（5%），IVIG是按需导入的。各国一般人口的知识和意识等级（0至10）为中位数/四分位数（IQR） 3(2-5)，其机构外医学界的中位数/四分位数为7（6-8）。阿拉伯国家在KD管理和治疗方面的实践差异需要扎实的主动合作。一般人群对KD的认识和知识估计较低，而医学界对KD的认识和知识估计较高。Kawarabi合作项目将提供一个平台，以评估阿拉伯人群中KD的疾病负担，减少实践差异并促进基于人群的知识。在线版本包含补充材料，可在10.1007/s00246-022-02844-w获得。
Studies on Kawasaki disease (KD) in Arab countries are scarce, often providing incomplete data. This along with the benefits of multicenter research collaboratives led to the creation of the KD Arab Initiative [Kawarabi] consortium. An anonymous survey was completed among potential collaborative Arab medical institutions to assess burden of KD in those countries and resources available to physicians. An online 32-item survey was distributed to participating institutions after conducting face validity. One survey per institution was collected. Nineteen physicians from 12 countries completed the survey representing 19 out of 20 institutions (response rate of 95%). Fifteen (79%) institutions referred to the 2017 American Heart Association guidelines when managing a patient with KD. Intravenous immunoglobulin (IVIG) is not readily available at 2 institutions (11%) yet available in the country. In one center (5%), IVIG is imported on-demand. The knowledge and awareness among countries’ general population was graded (0 to 10) at median/interquartiles (IQR) 3 (2–5) and at median/IQR 7 (6–8) in the medical community outside their institution. Practice variations in KD management and treatment across Arab countries require solid proactive collaboration. The low awareness and knowledge estimates about KD among the general population contrasted with a high level among the medical community. The Kawarabi collaborative will offer a platform to assess disease burden of KD, among Arab population, decrease practice variation and foster population-based knowledge. The online version contains supplementary material available at 10.1007/s00246-022-02844-w.
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影响因子：
1.6
作者：
Harahsheh AS;Kipps AK;Hart SA;Cassidy SC;Clabby ML;Hlavacek AM;Hoerst AK;Graupe MA;Madsen NL;Bakar AM;Del Grippo EL;Patel SS;Bost JE;Tanel RE;Pediatric Acute Care Cardiology Collaborative (PAC3)
通讯作者：
Pediatric Acute Care Cardiology Collaborative (PAC3)
DOI：
10.1161/circoutcomes.115.001956
发表时间：
2015-07-01
影响因子：
6.9
作者：
Anderson, Jeffrey B.;Beekman, Robert H.;Lannon, Carole
通讯作者：
Lannon, Carole
影响因子：
3.6
作者：
Harahsheh, Ashraf S.;Sharron, Matthew P.;DeBiasi, Roberta L.
通讯作者：
DeBiasi, Roberta L.
DOI：
10.1111/j.1651-2227.1978.tb16364.x
发表时间：
1978-01-01
期刊：
ACTA PAEDIATRICA SCANDINAVICA
影响因子：
--
作者：
MAJEED, HA;OLSON, IA
通讯作者：
OLSON, IA
影响因子：
3.6
作者：
Kline, Jaclyn N.;Isbey, Sarah C.;Breslin, Kristen A.
通讯作者：
Breslin, Kristen A.