Families' experience with seeking treatment for recent-onset psychosis.
Families' experience with seeking treatment for recent-onset psychosis.
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DOI：
10.1176/ps.2009.60.6.812
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发表时间：
2009-06
期刊：
影响因子：
--
通讯作者：
Corcoran C
中科院分区：
文献类型：
--
作者：
Gerson R;Davidson L;Booty A;McGlashan T;Malespina D;Pincus HA;Corcoran C
采用定性研究方法来了解为新发精神病年轻人寻求治疗的家庭的经历；这些知识可以为服务设计提供信息。作者在 1999 年至 2002 年期间对纽约大都市区 13 名新发非情感性精神障碍患者的家人进行了开放式访谈，重点关注他们寻求治疗和参与心理健康服务的经历。家庭成员描述了早期诊断不明确以及获得治疗的障碍。进入精神卫生系统经常发生在危机背景下，非洲裔美国家庭特别报告了警察的介入。住院治疗被描述为痛苦但又可以缓解痛苦。善后服务被描述为支离破碎，与第三方付款人的问题至关重要。家人表达了获得更多教育、信息和支持的愿望，并描述了他们与耻辱的斗争。这些来自家庭的数据是在最近的文献中提出的，这些文献涉及精神障碍早期阶段的专门治疗方案的功效及其家庭的参与。这些定性研究数据支持了让家庭参与并对其进行精神病教育的重要性：对精神病的认识、治疗和获得服务的机会。他们还强调需要解决耻辱问题并实施治疗结构性变革，以确保护理的连续性和覆盖面。专门的首发精神病服务可以解决这些问题，并且可以最大限度地减少治疗早期非自愿住院和警察介入的创伤经历。
Qualitative research methods were used to understand the experiences of families seeking treatment for young people with recent-onset psychosis; such knowledge can inform services design. The authors conducted open-ended interviews in 1999 through 2002 with family members of 13 patients with recent-onset nonaffective psychotic disorders in the New York metropolitan area, focusing on their experience in seeking treatment and engaging with mental health services. Family members described early lack of clarity of diagnosis and obstacles to obtaining treatment. Entry into the mental health system frequently occurred in the context of crisis, with African-American families specifically reporting police involvement. Inpatient hospitalization was depicted as traumatic yet offering relief. Aftercare was described as fragmented, and issues with third-party payers were paramount. Families expressed a desire for more education, information, and support and described their struggles with stigma. These data from families are presented in the context of more recent literature as to the efficacy of specialized treatment programs for early stages of psychotic disorder and their involvement of families. These qualitative research data support the importance of involving and educating families about psychosis: its recognition, its treatment, and access to services. They also highlight the need to address stigma and implement structural changes in treatment that ensure continuity and coverage of care. Specialized first-episode psychosis services may address these issues, and they may minimize the traumatic experiences of involuntary hospitalization and police involvement early in treatment.
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