'We are the eyes and ears of researchers and community': Understanding the role of community advisory groups in representing researchers and communities in Malawi.
'We are the eyes and ears of researchers and community': Understanding the role of community advisory groups in representing researchers and communities in Malawi.
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“我们是研究人员和社区的眼睛和耳朵”：了解社区咨询小组在代表马拉维的研究人员和社区中的作用。
DOI：
10.1111/dewb.12163
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发表时间：
2018-12
影响因子：
2.2
通讯作者：
Desmond N
中科院分区：
文献类型：
--
作者：
Nyirenda D;Sariola S;Gooding K;Phiri M;Sambakunsi R;Moyo E;Bandawe C;Squire B;Desmond N
社区参与保护和增强参与的个人和社区的能力是研究中的一项道德要求。然而，用于改善道德实践的一些方法的有效性或相关性的证据有限。我们进行了一项研究，以了解社区参与健康研究的理由，相关性和好处。本文借鉴了这一更广泛的研究，并侧重于塑造社区咨询小组（CAG）成员的选择过程和功能在马拉维的因素。定性的研究设计，两个参与性的研讨会进行了CAG成员，以了解他们在研究中的作用。讲习班的调查结果与人种学实地记录、与利益攸关方的关键线人访谈、与社区成员的焦点小组讨论和文件审查的见解进行了三角分析。对数据进行了人工编码，并使用专题内容分析来确定主要问题。结果表明，在城市和农村地区，民主选择儿童援助团成员都是一个挑战。我们还注意到，CAG成员认为他们的角色是一种就业形式，可能导致社区利益的无效代表。我们的结论是，民主投票是不够的，以确保有效代表社区的利益的伦理相关性。CAG成员理解研究伦理、识别对社区的潜在危害并向研究人员传达反馈的能力对于优化外行社区的参与和避免象征性参与至关重要。
Community engagement to protect and empower participating individuals and communities is an ethical requirement in research. There is however limited evidence on effectiveness or relevance of some of the approaches used to improve ethical practice. We conducted a study to understand the rationale, relevance and benefits of community engagement in health research. This paper draws from this wider study and focuses on factors that shaped Community Advisory Group (CAG) members’ selection processes and functions in Malawi. A qualitative research design was used; two participatory workshops were conducted with CAG members to understand their roles in research. Workshop findings were triangulated with insights from ethnographic field notes, key informant interviews with stakeholders, focus group discussions with community members and document reviews. Data were coded manually and thematic content analysis was used to identify main issues. Results have shown that democratic selection of CAG members presented challenges in both urban and rural settings. We also noted that CAG members perceived their role as a form of employment which potentially led to ineffective representation of community interests. We conclude that democratic voting is not enough to ensure effective representation of community's interests of ethical relevance. CAG members’ abilities to understand research ethics, identify potential harms to community and communicate feedback to researchers is critical to optimise engagement of lay community and avoid tokenistic engagement.
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DOI：
10.1097/00126334-200308010-00013
发表时间：
2003-08-01
影响因子：
3.6
作者：
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通讯作者：
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影响因子：
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影响因子：
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作者：
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通讯作者：
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