Preliminary evidence supporting a framework of psychological adjustment to inflammatory bowel disease.
Preliminary evidence supporting a framework of psychological adjustment to inflammatory bowel disease.
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DOI：
10.1002/ibd.21215
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发表时间：
2010-10
影响因子：
4.9
通讯作者：
Keefer, Laurie
中科院分区：
文献类型：
--
作者：
Kiebles, Jennifer L.;Doerfler, Bethany;Keefer, Laurie
慢性病适应是一个多维度的概念，被描述为成功适应疾病的特定需求，保持心理健康，功能状态和生活质量。炎症性肠病（IBD）由于疾病的不可预测，复发和缓解过程而特别具有挑战性。所有参与者都是在大学医疗中心胃肠科门诊接受治疗的患者。参与者完成了一项问卷调查，评估疾病的看法，压力，情绪功能，疾病的接受，应对，疾病的影响，疾病特异性和健康相关的生活质量。调整被衡量为感知残疾，心理功能，疾病特异性和健康相关的生活质量的复合。参与者是38名诊断为克罗恩病（45%）或溃疡性结肠炎（55%）的成年人。我们观察到，我们定义的调整变量与疾病特征密切相关（r = 0.33-0.80，P均< 0.05），是疾病的情绪表征（r = 0.44-0.58，P < 0.01）、疾病接受度（r = 0.34-0.74，P < 0.05）、应对方式（r = 0.33-0.60，P < 0.05）、胃肠病就诊频率（r = 0.39-0.70，P < 0.05）。更好的调整与更大的肠道和全身健康，增加活动参与和症状耐受性，减少疼痛，减少感知压力，减少胃肠病学家的访问。所有调整变量高度相关（r = 0.40-0.84，P < 0.05），并表现出凝聚力的复合。本研究提出的框架和结果强调了考虑疾病管理的补充途径的重要性，包括认知，情感和行为因素，超越了传统的医疗和心理（抑郁和焦虑）组件。
Adjustment to chronic disease is a multidimensional construct described as successful adaptation to disease-specific demands, preservation of psychological well-being, functional status, and quality of life. Inflammatory bowel disease (IBD) can be particularly challenging due to the unpredictable, relapsing and remitting course of the disease. All participants were patients being treated in an outpatient gastroenterology clinic at a university medical center. Participants completed a survey of questionnaires assessing illness perceptions, stress, emotional functioning, disease acceptance, coping, disease impact, and disease-specific and health-related quality of life. Adjustment was measured as a composite of perceived disability, psychological functioning, and disease-specific and health-related quality of life. Participants were 38 adults with a diagnosis of either Crohn’s disease (45%) or ulcerative colitis (55%). We observed that our defined adjustment variables were strongly correlated with disease characteristics (r = 0.33–0.80, all P < 0.05), an emotional representation of illness (r = 0.44–0.58, P < 0.01), disease acceptance (r = 0.34–0.74, P < 0.05), coping (r = 0.33–0.60, P < 0.05), and frequency of gastroenterologist visits (r = 0.39–0.70, P < 0.05). Better adjustment was associated with greater bowel and systemic health, increased activities engagement and symptom tolerance, less pain, less perceived stress, and fewer gastroenterologist visits. All adjustment variables were highly correlated (r = 0.40–0.84, P < 0.05) and demonstrated a cohesive composite. The framework presented and results of this study underscore the importance of considering complementary pathways of disease management including cognitive, emotional, and behavioral factors beyond the traditional medical and psychological (depression and anxiety) components.
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影响因子：
4.9
作者：
Adler, Jeremy;Raju, Sheela;Zimmermann, Ellen M.
通讯作者：
Zimmermann, Ellen M.
影响因子：
7.6
作者：
FOLKMAN, S;LAZARUS, RS
通讯作者：
LAZARUS, RS
DOI：
10.1097/00005176-199904001-00003
发表时间：
1999-04-01
影响因子：
2.9
作者：
Irvine, EJ
通讯作者：
Irvine, EJ
DOI：
10.1080/13548500701244965
发表时间：
2007-10-01
期刊：
Psychology, health & medicine
影响因子：
--
作者：
Chalk, Holly McCartney
通讯作者：
Chalk, Holly McCartney
影响因子：
1.9
作者：
Nordin, K;Påhlman, L;Lööf, L
通讯作者：
Lööf, L