African American participation in Alzheimer's disease research that includes brain donation.
African American participation in Alzheimer's disease research that includes brain donation.
复制标题
DOI：
10.1177/1533317511423020
复制
发表时间：
2011-09
期刊：
影响因子：
--
通讯作者：
Danner DD
中科院分区：
文献类型：
--
作者：
Darnell KR;McGuire C;Danner DD
从历史上看，少数群体在研究和临床试验中的代表性不足。少数群体缺乏参与的原因有很多，包括对以白色人为主的研究机构的不信任，以及缺乏关于研究目的的教育。目前的研究旨在确定非裔美国人对阿尔茨海默病（AD）研究的兴趣，并招募非裔美国人作为目前AD研究的正常对照，目的是最终获得死亡后大脑捐赠的同意。参与者是46名年龄在65岁或以上的非裔美国人，他们接受了关于医疗程序知识和研究经验的采访。在最初的招聘面试后，31.7%的参与者同意每年进行一次测试，最终捐献大脑。研究结果表明，参与者对用于延长生命的医疗程序的了解与捐赠大脑的意愿之间存在中度关系。
Historically, minority groups have been underrepresented in research and clinical trials. The lack of participation by minorities has been attributed to variety of factors including a mistrust of the predominately white research establishments and a lack of education about the purpose of research. The current study was designed to determine African-American interest in Alzheimer’s disease (AD) research and to recruit African Americans as normal controls in current AD studies with the goal of eventually gaining consent for brain donation upon death. Participants were 46 African Americans aged 65 or older who were interviewed about knowledge of medical procedures and experience with research. After initial recruitment interviews, 31.7% of participants agreed to yearly testing with eventual brain donation. Study findings suggest a moderate relationship between participants’ knowledge of medical procedures used to prolong life and willingness to donate one’s brain.
登录
查看更多内容
影响因子：
45.3
作者：
Phipps, E;True, G;Braitman, LE
通讯作者：
Braitman, LE
影响因子：
2.8
作者：
Stahl, SM;Vasquez, L
通讯作者：
Vasquez, L
影响因子：
1.5
作者：
Mason, SE
通讯作者：
Mason, SE
影响因子：
4.3
作者：
Dancy, BL;Wilbur, J;Barnes-Boyd, C
通讯作者：
Barnes-Boyd, C
影响因子：
7
作者：
Faison, Warachal E.;Schultz, Susan K.;Mintzer, Jacobo E.
通讯作者：
Mintzer, Jacobo E.