The diary of a nonagenarian‐centenarian woman with dementia: Memory loss, life changes, and community care in Japan
The diary of a nonagenarian‐centenarian woman with dementia: Memory loss, life changes, and community care in Japan
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一位患有痴呆症的九十多岁女性的日记：日本的记忆丧失、生活变化和社区护理
DOI：
10.1111/ijn.12655
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发表时间：
2018
期刊：
影响因子：
--
通讯作者：
Shiya Y
中科院分区：
文献类型：
--
作者：
Suwa S;Otani S;Tsujimura M;Nogawa K;Shiya Y
目的：本研究旨在通过详细分析一位90 - 100岁的痴呆独居女性的日记来探讨她的经历和想法。数据来源：在获得阿基（化名）、她的家人和照顾者的同意后，提供了她的日记副本，用日语手写，用于分析。方法：日记的内容被广泛地组织成主题，并沿着顺序时间轴对每个主题进行定性内容分析。随着时间的推移，注意到的角度，表达，脚本的质量和频率的符号的变化进行了比较，由医疗保健提供者记录的痴呆症和日常生活活动的临床评估。结果：在护理经理的建议下，阿基开始写日记。到99岁时，阿基成了寡妇，并指出：“我一个人很孤独。”但仍表示希望：“我不会放弃自己。”关于失忆，她写道：“我已经忘记了今天下午发生的事情，”和“我会为自己做事情。”关于依赖性，她说：“我从孩子和家庭以外的其他人那里得到帮助。”并对家庭护理人员发表评论：“我不知道他们是否来帮忙。”“是我认识的人吗？”虽然她认为他们拿走了她的财物，但她写道：“我会努力不忘记感谢他们。”讨论：日记显示，即使痴呆症进展，阿基意识到她的认知能力下降，家庭损失。她用日记作为应对方法，并解决与家人和照顾者的关系。
Aim:This study aimed to explore the experiences and thoughts of a nonagenarian‐centenarian woman with dementia living alone, through detailed analysis of her unsolicited diary.Data Source:After receiving consent from Aki (a pseudonym), her family and caregivers, copies of her diaries, hand‐written in Japanese, were provided for analysis.Methods:The content of the diaries was broadly organized into themes and qualitative content analysis carried out for each theme along a sequential timeline. Changes in perspective, expression, quality of script, and frequency of notations were noted over time are compared with clinical assessments of dementia and activities of daily living recorded by health care providers. Demographic history was obtained from family members.Results:On recommendation by her nursing care manager, Aki began keeping a diary. By age 99, Aki was widowed and noted: “I'm lonely by myself.” but still expressed hope: “I won't give up on myself.” Concerning memory loss, she wrote: “I've already forgotten what happened this afternoon,” and “I'll do things for myself.” Regarding dependence, she said: “I get help from my children and others outside the family.” And commented on the home care staff: “I don't know if they've come to help.” “Is it someone I know well?” Although she thought that they took her belongings, she wrote: “I'll try not to forget to be grateful to them.”Discussion:The diaries show that even as the dementia progressed, Aki was aware of her cognitive decline compounded by family losses. She used the diary as a coping method and to address relationships with family and caregivers.
DOI：
10.1111/hex.12618
发表时间：
2018-03
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
--
作者：
Baines RL;Regan de Bere S
通讯作者：
Regan de Bere S