Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology.

Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology.
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DOI:
10.1111/hex.12618
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发表时间:
2018-03
期刊:
Health expectations : an international journal of public participation in health care and health policy
影响因子:
--
通讯作者:
Regan de Bere S
Regan de Bere S
中科院分区:
其他
文献类型:
--
作者:
Baines RL;Regan de Bere S

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国际上对病人和公众的积极参与很感兴趣。然而,目前还没有就如何最好地优化其应用达成共识。确定和评估患者和公众参与(PPI)在医疗和社会护理服务,研究,教育和监管跨医学,牙科和护理的基本原则。四阶段方法:(i)对已发表文献和灰色文献进行广泛的系统性审查;(ii)对审查结果进行归纳性专题分析;(iii)制定最佳做法原则;(iv)使用经修改的德尔菲方法对已确定的原则进行共识测试。对12篇系统性综述和88篇灰色文献出版物进行了审查,最终确定了13项原则,随后由18位PPI专家进行了评估。对9项原则的审查获得了基本共识(>75%的一致性)。在平等的伙伴关系和共享信息的工作取得了最高的共识率:16/17的基本94.1%; 1/17的理想5.8%。其余四项未能达成基本共识的原则被专家答复者列为可取的原则。没有任何原则被认为是无关紧要的。没有提出任何替代办法。受访专家建议,必须实现基本原则,以优化PPI最佳实践。为了推进生产者价格指数实践,还应尽可能追求理想的原则。这项研究的创新方法通过提供以前无法获得的关于PPI最佳实践的共识来推进现有知识。研究结果对希望有效合作的教育工作者、监管机构、研究人员和从业人员具有重要的理论和实践意义。
There is international interest in the active involvement of patients and the public. However, consensus on how best to optimize its application is currently unavailable. To identify and assess the underlying principles of patient and public involvement (PPI) in health and social care services, research, education and regulation across medicine, dentistry and nursing. A four‐phase methodology: (i) an extensive systematic review of published and grey literature; (ii) inductive thematic analysis of review findings; (iii) development of best practice principles; and (iv) consensus testing of identified principles using a modified Delphi methodology. Twelve systematic reviews and 88 grey literature publications were reviewed leading to the unique identification of 13 principles later assessed by 18 PPI experts. Essential consensus (>75% agreement) was obtained for nine principles reviewed. Working in equal partnership and sharing information achieved the highest consensus rates: 16/17 essential 94.1%; 1/17 desirable 5.8%. The four remaining principles that failed to reach essential consensus were categorized as desirable by expert respondents. No principles were considered irrelevant. No alternatives were suggested. Expert respondents suggest essential principles must be achieved to optimize PPI best practice. To advance PPI practice, desirable principles should also be aspired to wherever possible. This study's innovative approach advances existing knowledge by providing previously unavailable consensus about PPI best practice. Research findings hold important theoretical and practical implications for educators, regulators, researchers and practitioners looking to effectively work together.
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