Dr Google and the consumer: a qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions.

Dr Google and the consumer: a qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions.
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DOI:
10.2196/jmir.3706
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发表时间:
2014-12-02
影响因子:
7.4
通讯作者:
Emmerton L
Emmerton L
中科院分区:
医学2区
文献类型:
--
作者:
Lee K;Hoti K;Hughes JD;Emmerton L

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网上提供的大量健康信息为消费者提供了更多获得与健康状况管理有关的信息的机会。鉴于全球以消费者为中心的医疗保健模式的推动力越来越大,特别是在慢性健康状况的管理方面,以及认识到普通消费者在寻找,理解和对在线来源的健康信息采取行动方面所面临的挑战,这一点尤为重要。有一个缺乏文献探讨消费者的导航需求方面访问在线健康信息。此外,现有的干预措施似乎是说教性质的,不清楚这种干预措施是否符合消费者的需要。我们的目标是探索慢性健康状况的消费者在消费者的在线健康信息寻求行为的更广泛背景下寻找在线健康信息的导航需求。还查明了在线导航的潜在障碍。半结构化的采访进行了与成年消费者谁报告使用互联网的健康信息,并至少有一个慢性健康状况。参与者是从西澳大利亚州的九个大都市社区药房以及通过各种媒体渠道招募的。对访谈进行录音,逐字转录,然后导入QSR NVivo 10。采用了两种既定的专题分析方法。首先,数据驱动的方法被用来最大限度地减少分析中的潜在偏差,提高结构和标准的有效性。随后采用了一种理论驱动的方法来确认前一种方法确定的主题,并确保确定的主题与目标相关。两个层次的分析进行了数据驱动和理论驱动的方法:显式层次的分析,从而确定了面子价值的主题,和潜在的层次的分析,从而确定了基本的概念。我们进行了17次访谈,到第14次访谈时数据饱和。虽然我们确定了广泛的在线健康信息寻求行为,但大多数与消费者健康专业咨询期间讨论的信息有关,例如寻找有关药物副作用的信息。我们确定的障碍包括内在的障碍,如有限的电子健康素养,和外在的障碍,如不同的在线来源之间的信息不一致。我们的参与者的导航需求是外在的,包括健康专业人员指导消费者到适当的在线资源和更好地过滤在线健康信息。我们的参与者的在线健康信息寻求行为,报告的障碍和导航需求是由信任,患者激活和相关性的主题支撑的。这项研究表明,旨在帮助消费者浏览在线健康信息的现有干预措施可能不是消费者想要或认为他们需要的。电子健康素养和患者激活似乎是消费者的在线健康信息寻求行为的背景下流行的概念。此外,卫生专业人员在指导消费者获得高质量在线健康信息方面的作用也得到了强调。
The abundance of health information available online provides consumers with greater access to information pertinent to the management of health conditions. This is particularly important given an increasing drive for consumer-focused health care models globally, especially in the management of chronic health conditions, and in recognition of challenges faced by lay consumers with finding, understanding, and acting on health information sourced online. There is a paucity of literature exploring the navigational needs of consumers with regards to accessing online health information. Further, existing interventions appear to be didactic in nature, and it is unclear whether such interventions appeal to consumers’ needs. Our goal was to explore the navigational needs of consumers with chronic health conditions in finding online health information within the broader context of consumers’ online health information-seeking behaviors. Potential barriers to online navigation were also identified. Semistructured interviews were conducted with adult consumers who reported using the Internet for health information and had at least one chronic health condition. Participants were recruited from nine metropolitan community pharmacies within Western Australia, as well as through various media channels. Interviews were audio-recorded, transcribed verbatim, and then imported into QSR NVivo 10. Two established approaches to thematic analysis were adopted. First, a data-driven approach was used to minimize potential bias in analysis and improve construct and criterion validity. A theory-driven approach was subsequently used to confirm themes identified by the former approach and to ensure identified themes were relevant to the objectives. Two levels of analysis were conducted for both data-driven and theory-driven approaches: manifest-level analysis, whereby face-value themes were identified, and latent-level analysis, whereby underlying concepts were identified. We conducted 17 interviews, with data saturation achieved by the 14th interview. While we identified a broad range of online health information-seeking behaviors, most related to information discussed during consumer-health professional consultations such as looking for information about medication side effects. The barriers we identified included intrinsic barriers, such as limited eHealth literacy, and extrinsic barriers, such as the inconsistency of information between different online sources. The navigational needs of our participants were extrinsic in nature and included health professionals directing consumers to appropriate online resources and better filtering of online health information. Our participants’ online health information-seeking behaviors, reported barriers, and navigational needs were underpinned by the themes of trust, patient activation, and relevance. This study suggests that existing interventions aimed to assist consumers with navigating online health information may not be what consumers want or perceive they need. eHealth literacy and patient activation appear to be prevalent concepts in the context of consumers’ online health information-seeking behaviors. Furthermore, the role for health professionals in guiding consumers to quality online health information is highlighted.
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